Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-11-2014, 02:14 PM #1
mommystime2 mommystime2 is offline
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Default Things were good, hence were....

Hi all, I have been doing ot and started a new med with it lyrica. Wasn't doing so well so a week into both the lyrica was increased to 100 mg 2x a day, then week 3 was increased 100 mg 3x day. Then the dizzy spells started increasing, ot was doing well tho. Last week ot lady told me I didn't look good, I told her about the dizzy spells worsening, she took my blood pressure and it was really high, so sent me to PCA, he decreased lyrica back to 100 mg at bedtime, the pain has pain increasing to the point I just sit and want to cry, I can barely walk. My feet feel like pins n needles, so last night we increased to 200 mg at bed with lorazepam, and take hydrocodone as needed. I slept last night, but I'm feeling the increase yet it again getting horrible, to the point I don't wanna get up to use bathroom cuz it hurts to walk. Anyone else been through similar? Crps in right arm horrible, left elbow, and now feet
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Old 01-14-2014, 12:21 PM #2
RSD ME RSD ME is offline
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Hi Mom, I'm sorry you are having such a hard time. I've never been on Lyrica, but I've been on Cymbalta and had similar symptoms. I felt very dizzy and also got even more depressed then I was before so I had my dr take me off of it. It didn't even help with my pain so it was just as well. If I were you, I would ask your dr if you could try something else instead of Lyrica. My dr told me that Neurontin/Gabapentin was similar to Lyrica. I take Neurontin and it helps alot more than the Cymbalta ever did. I also take percocet and advil with it to deal with the pain. And I take Xanax and Zoloft for depression and anxiety. I hope your dr can help you to feel better soon. My thoughts and prayers are with you . Take care.
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Old 01-14-2014, 02:24 PM #3
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Hi Mommie,
Aww man, I'm sorry you're being so tortured by this!
I too had to cut way back on the Lyrica. I tried to gradually
increase it in the beginning the way they wanted but I couldn't
handle it either. Maybe it's the combo of meds?

I still take Cymbalta & Baclofen at night. I've tried many therapies,
but so far the best relief for me are the nerve blocks i get about every 3 wks.
At least I'm semi functional in my home life.
The other non med. things that help me are a tens unit, heat, warm epsom
salt soak, magnesium citrate and Vit. C. Ask your Dr. about the last 2
especially in case of stomach issues.

Hope you get some relief!!
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