Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-13-2014, 12:19 AM #1
RSD ME RSD ME is offline
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Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default Hope everyone is well

Hi all, I just wanted let you know that I hope you're all doing okay and your rsd pain is at the lowest levels possible, if not gone completely. I hope your New Year is going well too. Mine started out rocky on top of rsd pain, dealing with the loss of my Great Aunt and then dealing with drs that think they know everything about rsd when they don't. And then trying to find new drs that actually want to admit that they don't know everything about it and actually are trying to help me by listening to my symptoms and learning more about rsd. I don't know why some drs get so indignant and roll their eyes when I ask them if they know what rsd is when I first see them. I just want to make sure, and some don't know what it is. It's very frustrating. I think some say they know what it is, even when they don't. It's just silly and makes me move on to another dr. I have had my rsd spread confirmed by three drs, my pm and two rheumatologists this year. My arms have long hair growth on them and I have constant burning in my hands and intermittant burning in my feet. I'm not too happy about this, but am trying to accept and look for new procedures and meds to help. Going to check with my pm dr this week before I see my endo dr next week to schedule gall bladder surgery. Also seeing a new rheumatologist because my right hip pain and leg are so bad I can barely walk. Got blookwork and xrays last week and after I get results, getting an MRI to check for rhuematoid arthritis. I was also informed that rsd is an autoimmune disease. In the meantime, another tooth died. Not too much fun yet this year, but maybe this new drug RSD HOPE is talking about may prove to be the cure for rsd. I'm keeping my fingers crossed. I hope you are all having a better year then me. My thoughts and prayers are always with all of you. Take care.
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