Lol. I'll be coordinating a UK branch then....or the travel costs might prove expensive!!!!

It would be great to have something involving both countries (and others) so we don't get the whole UK/US divide. After all, we all support and help each other here, and yet live miles away from each other. That should be able to translate into something more definite and real. It would be a massive project, but it would be great to end up one day with something just for CRPS that operated in regional areas so that we could have support groups and meetings, etc., but also had a country-wide aspect with a pooling of information and support.

I've often thought of the whole site thing dedicated to just CRPS, and with organised resources for us to print off for doctors, dentists etc, hospital protocols, new research etc. This site is great for support, but resources aren't easy to find. It's ok for us web-savvy reading folk to do the research, but there must be plenty out there who struggle with that side of things....and as we all know, knowledge is power and protection with CRPS .

The only reason I haven't tried to do it is just the time factor, and the pressure of doing it alone. It would be fab to do as part of a group, where we can pool our ideas and skills and time. I know there are excellent sites around like RSDHope etc, but I just feel there is a need for something more.

Bram.