Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-19-2014, 06:44 PM #1
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Hi moosey,

My BP was high recently when I was at the docs, and now he's gone all twitchy about it... My BP has always been pretty low, both at docs and at home, so not sure what to make of it really. It's so hard to know what symptoms to take seriously and investigate further, and which to accept as CRPS vagaries and try to manage. I'm rubbish with most meds, and the last thing I want is to experiment with any more right now.

I hope you feel a bit better tomorrow moosey. Take care of yourself.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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moosey2me (01-20-2014)
Old 01-20-2014, 10:17 AM #2
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Originally Posted by moosey2me View Post
Well this morning I went to my primary doctor..My level high,using my cane today..My bloodpressure high.145 over 100...he said I really need to keep a eye on that..I also spoke about my weight gain..It sucks..Asked me if I am walking any better??Ya right..I wish..Its so hard.I spoke to him about my PM doctor..He was shocked,but said try to look at it as though I was in his shoes waiting on people complaining all day about this pain,that pain,and trying to figure out who is abusing meds. and was is not..Which I guess I can understand he is human too..I just hope his outlook changes.He told me to hang in there until I get this stimulator and see how things go..
Hi Moosey!

I'm sorry that you're struggling both with BP and with inadequate pain control. Lack of proper pain control for what we have ticks me off... bad. I'm sorry but if you're in the medical profession, and you're in the business of treating a Pt.'s PAINFUL disease, then treat it. If not, then don't take on these types of Pt.'s and refer them to someone who can help them.

My pain has not been managed properly for a while now and I'm regressing and praying that this doc I see on Friday is a step in the right direction to getting regular relief.

After reading your post I went here http://www.rsds.org/4/resources/pain...hysician_.html

Then from there I went here http://www.medsch.wisc.edu/painpolic...ix.htm#NewYork

I thought this was an excellent site! Easy to navigate with their interactive map. When on their site, scroll down and you'll see the US map, the just click on your state.

I hope you feel better soon and are able to get the relief you NEED and deserve.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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moosey2me (01-20-2014)
Old 01-20-2014, 05:05 PM #3
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Quote:
Originally Posted by Vrae View Post
Hi Moosey!

I'm sorry that you're struggling both with BP and with inadequate pain control. Lack of proper pain control for what we have ticks me off... bad. I'm sorry but if you're in the medical profession, and you're in the business of treating a Pt.'s PAINFUL disease, then treat it. If not, then don't take on these types of Pt.'s and refer them to someone who can help them.

My pain has not been managed properly for a while now and I'm regressing and praying that this doc I see on Friday is a step in the right direction to getting regular relief.

After reading your post I went here http://www.rsds.org/4/resources/pain...hysician_.html

Then from there I went here http://www.medsch.wisc.edu/painpolic...ix.htm#NewYork

I thought this was an excellent site! Easy to navigate with their interactive map. When on their site, scroll down and you'll see the US map, the just click on your state.

I hope you feel better soon and are able to get the relief you NEED and deserve.
I am greatful for your words..I hope you get better too..I am taking my BP 2 to 3 times a day..its still high today..Thank you for the sites..
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