Oh, Vrae! No, No, No!. Enough already, you've had way more than your share.
I see you've taken advice on comfort ideas & thats good!

Glad you didn't lose your sense of humor "fire extinguisher"

Maybe wishing some kind of mantra............It's gonna calm down..........
Please keep us posted.

VRAE hang on to those comfort measures - whatever it takes to cope with these things in a healthy way. You can do it, girl!!

Hi Vrae,
I hope your feeling better today.
Thanks for sharing your comfort list.
I especially like the music and beautiful sunrise. I'm trying to listen to more music and take time to watch the sun rise every morning now.
Thanks again for sharing your list and I will pray that you feel better every day. Take care.
With love, Renee.

Awe, thanks Renee. But I must be honest, it's sometimes a minute by minute thing. Sometimes it works, and sometimes nothing works. This particular day that I did these things I felt pretty decent until about 1pm, then things began to unravel and it ended up being a very painful night. It's a can til can't thing for me. Sometimes it works, and sometimes not at all. My best time of day are usually mornings.

Music and nature have saved my life, my mind. Okay, chocolate too.. lol

....and a nice cup of tea Never forget the healing powers of a nice cup of something hot when you are feeling rubbish.

I'm best in the mornings. By late afternoon I'm struggling, and around tea-time my feet will flare suddenly. Leg chills, arm aches, blah blah flippin' blah. The bedtime stair hike is the slowest of the day for me. Ouch, ouch, ouch, ouch....

But. Big but. Tomorrow is another day, and I always try to have hope that it will be ok. Like you say, sometimes stuff works, sometimes you can do everything possible and it still becomes terrible, and you just have to survive those times. But mostly, it's ok. No better, but ok is pretty good now lol, and I'll take what I can get!

Hope all you gals (and guys) are doing ok today. iHugs for all!

Bram.

Good Morning Vrae,

I woke up thinking about you! I really hope your new Neuro doctor is compassionate towards you and educated in CRPS and the effects of it on our bodies. Hoping this is a giant step forward for you in terms of getting a better handle on pain control.

Wishing you the very best outcome from this appointment,
Tessa

I hope you're doing okay today too Vrae with your new Neuro dr. I'm praying that your appointment went well. Take care. With love, Renee.

Made me smile that you've ask. Thank you for thinking of me! This was a big day for sure. I've waited 3 months to see him and it was worth it I think.

I'm pooped, but the short version is I like him and my husband likes him, a lot. We both left feeling like we're finally perhaps moving in the right direction. This new doc is going to reach out to a few pain docs and call me with a referral. Yay! I'm looking forward to that. He confirmed my Dx (no surprise to me.. but cool) and he's also going to add a drug called zonisamide in addition to the gaba. I have not heard of this drug but I'm all good with one of it's side effects of weight loss. he had a few more drugs that we can try if this doesn't work. I desperately need more relief from tremors and neuropathic pain (shocks). He wants me to have specialized and supervised PT, like water PT, okay, cool. I told him that I would like to avoid a wheelchair for as long as possible, so whatever that means. He did mention SCS and I told him I'm not sure I'm ready for that. He also talked about blocks, and I'm all good with trying that.

Anywho, it was an answered prayer and if the PM doc is as good, I will be STOKED!!

Thanks again! Hope you all are having a good day!

Hey Vrae! That is great news!! What a relief it must've been for you and your husband!! Hopefully you will get a great referral to a good PM dr. Definitely sounds like he was worth the wait! Wish I could find one like that

A side effect of weight loss?? Maybe I need to look up that drug too

So pleased for you Vrae. Good for you about time something went right. And like our lovely Nanc, I love the idea of a side effect of weight loss. That would make a change!

Bram.