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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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new trauma to initial site of CRPS II presentation... yikes!

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Old 02-06-2014, 06:24 PM #1
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Originally Posted by CRPStweet View Post
Vrae - not sure if helpful so many days after re-injury ... but I always use lidoderm patch on a newly injured area if possible. take care,
I can't stress how important Lidoderm patches have been for me avoiding spread. Accidents do happen and with RSD/CRPS related balance issues some of us are now accident prone!

The one area that I had a very difficult time with was my mouth because Lidoderm patches just wouldn't work in that area. Fortunately, a series of blocks resolved that problem.

VRAE--this might be a good time to consider Ketamine as well...
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Old 02-06-2014, 06:41 PM #2
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I can't stress how important Lidoderm patches have been for me avoiding spread. Accidents do happen and with RSD/CRPS related balance issues some of us are now accident prone!

The one area that I had a very difficult time with was my mouth because Lidoderm patches just wouldn't work in that area. Fortunately, a series of blocks resolved that problem.

VRAE--this might be a good time to consider Ketamine as well...
Hey Lit Love! So good to see you here! Yes, I do need some of those. I see a new PM doc next week and I need to put that on my list of things to ask for, or about. They should make one that is a body wrap lol. Ketamine is on the list to ask about. I agree that it's time. I've got to do something. Disease is taking me over and getting way out of hand.

Oh yes, I wobble around for sure, so you bet, accident prone is becoming accurate. I wonder if you couldn't use Lidocaine hydrochloride oral topical solution. They gave me this once to swallow in the hospital once for what I thought was a gallbladder issue. I had to swallow it and it made everything numb. WARNING!! It is some nasty tasting stuff! But I am thinking why couldn't you just swish it and NOT swallow it? Maybe that would help, idk.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Last edited by Vrae; 02-06-2014 at 09:22 PM.
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Old 02-06-2014, 08:27 PM #3
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Hey Lit Love! So good to see you here! Yes, I do need some of those. I see a new PM doc next week and I need to put that on my list of things to ask for, or about. They should make one that is a body wrap lol. Ketamine is on the list to ask about. I agree that it's time. I've got to do something. Disease is taking me over and getting way out of hand.

Oh yes, I wobble around for sure, so you bet, accident prone is becoming accurate. I wonder if you couldn't use Lidocaine hydrochloride oral topical solution. They gave me this once to swallow in the hospital once for what I thought was a gallbladder issue. I had to swallow it and it made everything numb. WARNIGN!! It is some nasty tasting stuff! But I am thinking why couldn't you just swish it and NOT swallow it? Maybe that would help, idk.
Luckily the blocks did the trick and my mouth is normal again. At the time it was in my jaw as well, so I think they were the best answer. I was off my regular dosage of meds when the spread happened. Thanks WC...
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Old 02-08-2014, 12:00 PM #4
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I use Lidocaine patches every day. The only downside is that it doesn't help with deep pain. Mostly numbs the skin and maybe a little bit of small muscles. It is worth trying. You wear them for 12 hours followed by 12 hours off. ~Lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 02-08-2014, 01:16 PM #5
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Yes it's a real Hobsons choice Lottie - I hated having to choose whether to sleep at night or have less pain during the day... But then they stopped being effective anyway so it didn't matter! I don't know, it's all so hard isn't it?

Bram.
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Old 02-08-2014, 10:39 PM #6
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Bram - tell me what"a Hobsons choice" is ?! ~lottie
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Old 02-09-2014, 07:49 AM #7
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Okay Lottie

'Hobsons Choice' just means that there isn't really a good choice, both options are equally bad. Just another way of saying you can't really win lol.

Take care and hope you are having a good day.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-08-2014, 01:48 PM #8
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Originally Posted by Lottie View Post
I use Lidocaine patches every day. The only downside is that it doesn't help with deep pain. Mostly numbs the skin and maybe a little bit of small muscles. It is worth trying. You wear them for 12 hours followed by 12 hours off. ~Lottie
Thanks Lottie! I've had them before, I just don't have any right now. They are good to have though. I have used them for spasms too.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 02-09-2014, 09:43 AM #9
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Originally Posted by Lottie View Post
I use Lidocaine patches every day. The only downside is that it doesn't help with deep pain. Mostly numbs the skin and maybe a little bit of small muscles. It is worth trying. You wear them for 12 hours followed by 12 hours off. ~Lottie
can you get them anywhere???
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Old 02-09-2014, 09:50 AM #10
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can you get them anywhere???
They are an Rx.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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