Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 01-22-2014, 09:54 AM #11
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

I wanted to thank all of you for your kind and caring words. I felt for so long like I was all alone in this situation and felt like I was a failure. But by hearing your comforting words I can see that I'm not alone or a failure. You're right, I didn't ask to have RSD and have never heard of it until I got it. My marriage was never perfect before I got rsd, and yes, there were rocky times. I am a nervous worry wort and am sort of an introvert. I communicate better with animals then with people. My husband is more laid back and loves to be around other people. He is a total extrovert. He has a big heart and has always helped me and our son when we needed it, but he does have a short fuse which makes him yell at times. But he's a good person. I'm far from perfect myself that's for sure. But no matter how hard things got, we always seemed to be able to face it together and hangle it. But rsd has been harder on our marriage than anything else we've ever faced. I know it's not easy having to drive me to all of my dr appts and the pharmacy to get my meds. And we didn't plan on him being my caregiver in our golden years. It's not easy for him. And then there's the financial stress from all my extra med bills from rsd. But like all of you said, it's not my fault I got rsd. It was an accident and I don't enjoy having to depend on someone else all the time either. I was always pretty independent until this happened. The other problem I have that has strained our marriage even more (without giving TMI) is that we now sleep in separate rooms. I cannot have anyone touch my skin. It sometimes burns and sometimes stings and it just hurts too much. I feel awful about this, but it's because of my rsd. I asked my husband to see a counselor with me, but he has never been one to express his feelings to strangers, so he won't go with me to one. He did say he will try to work with me to get along better. I need to be more understanding with his position now as well as the other way around. Hopefully, we will be able to make our marriage last. We've survived 25 years, and I hope we can survive another 25 years. All we can do is try to keep communicating. Anyway, I hope that all of your relationships go smoother and thank you again for all of your compassionate words. You are true friends. With love, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
St George 2013 (01-23-2014), zookester (01-22-2014)
Old 01-22-2014, 09:57 AM #12
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Quote:
Originally Posted by finz View Post
Renee,

I think it's important to remember, when you are beating yourself up about this, that you didn't ask for RSD, you didn't want RSD (heck, most of us probably didn't even know what it was !), and you didn't do anything to "deserve" developing this.

We still have to apologize if we've been extra irritable/snippy and during periods of some control over pain levels, it's nice to try to give your partner some extra attention and thank them for what they do.

My marriage was in trouble long before RSD raised it's ugly head, so I don't think I'm qualified to comment more on what to do to make a marriage work, but I very qualified to say I KNOW that feelings of guilt and being a burden make our pain issues so much worse.
Hi Finz,
Thank you for your kind words. I'm sorry your marriage was in trouble before rsd and hope that things work out for you. I will pray that they do. I also wanted to say on a side note that I love the picture of your dog. He looks alot my dog Sarah. There seems to be quite a few people who have dogs that look my mine. Pretty cool! Anyway, thanks again for caring and take care.
Sincerely, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
Old 01-22-2014, 09:59 AM #13
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Quote:
Originally Posted by finz View Post
Renee,

I think it's important to remember, when you are beating yourself up about this, that you didn't ask for RSD, you didn't want RSD (heck, most of us probably didn't even know what it was !), and you didn't do anything to "deserve" developing this.

We still have to apologize if we've been extra irritable/snippy and during periods of some control over pain levels, it's nice to try to give your partner some extra attention and thank them for what they do.

My marriage was in trouble long before RSD raised it's ugly head, so I don't think I'm qualified to comment more on what to do to make a marriage work, but I very qualified to say I KNOW that feelings of guilt and being a burden make our pain issues so much worse.
Quote:
Originally Posted by Brambledog View Post
I think there's probably a lot of us feeling that way Renee, so don't get so down on yourself about this.... Long term pain and physical limitations are bound to put stress on every relationship you have, especially your most important ones. And top of that is your marriage, because you go into it thinking of it as a partnership - then because of what the CRPS is doing to you, you feel like you've broken that contract and rewritten the rules...

You just have to remember, it's not our choice to deal with this. It's just what has happened, and if it had happened to your husband instead of you, you would be the one dealing with the changes in and for him. It's just the way the dice fall, for all of us.

If it helps at all, my husband and I actually saw a counsellor a while ago to talk through some of the ways our lives and relationship had changed, and the effects it was having on us. We'd been having a bit of a crappy time and it got us back on track - I'd recommend it every time. Our counsellor was lovely, and we just talked through everything and how it made us feel. It's amazing the difference it makes when you are talking to a complete outsider who knows nothing about your life but what you tell them. Very healing thing to do, and it makes it so much easier to see the other persons point of view...

There's no easy answers with any of this stuff, but you do need to kind of forgive yourself first of all. It's not your fault.

Take care and don't feel alone. We understand and we're with you on this one.

Bram.
Hi Bram,
I'm sorry you and your husband had to go to a counselor, but am glad things seem to be getting better for both of you. Thank you for sharing your experience with marriage and rsd and thank you for your kind words. I hope you have a pain free and happy day today.
From your friend, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
Old 01-22-2014, 10:35 AM #14
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Heart

Quote:
Originally Posted by zookester View Post
Hello Renee,

You are most certainly not alone and I am sorry you are feeling this way. I'm pretty sure most couples who have any type of chronic illness/condition, will admit that it takes a toll on their relationship at times. I think anything that takes your attention away from what is considered normal daily life whether that be pain, school, work etc., for a significant amount of time will try a relationship.

Even without chronic illness/disease relationships can be trying at times. All relationships take commitment in the best and worst of times.

Tessa
Hi Tessa,
I wanted to thank you again for your caring and compassionate words. You have made me feel that there is hope for my marriage as long as my husband and I keep trying to make it work. Your kindness have given me hope that things will be okay even though I have rsd. Thanks again. You're a good friend.
I hope you have a wonderful and pain free day today.
Sincerely, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
zookester (01-22-2014)
Old 01-22-2014, 11:26 PM #15
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Default

Hi Renee, I have also found it helps us when we find ways to smile together - watch a funny movie, swap funny stories, watch a sunrise/ sunset, anything light hearted that you two can connect on and foget about CRPS even if its just for a short time. Despite our losses, we still can do so much to keep quality in our life. Be well ~Lottie
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
Lottie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (01-23-2014), zookester (01-22-2014)
Old 01-23-2014, 04:22 AM #16
wasthere wasthere is offline
Junior Member
 
Join Date: Jan 2014
Posts: 7
10 yr Member
wasthere wasthere is offline
Junior Member
 
Join Date: Jan 2014
Posts: 7
10 yr Member
Default My response would be, which of my marriages did it cause problems?? LOL

My response would be, which of my marriages did it cause problems?? LOL....

OK to answer the actual question,......

Well into my third marriage I can say it makes it a lot harder to keep a marriage than without RSD. I seem to be a lot better with a group of girlfriends than with one partner since my injury. You might think that one would get a LOL, but I am serious....!......

For me at least and my partners, it is a lot easier to be able to spread the stress and medical visits around for all of us between ~three women from the problems having RSD causes. I am always honest about not wanting to be serious with any one woman from the start so they all know they are part of my group if they stick around. And believe it or not, I have never not had one stick around....

In my 5th year now in my current relationship I decided from the start this time to keep my other women in my life when I got serious. And in this relationship it has really helped with the dealing with my constant medical issues and stress. When one of them is fed up with my pain related problems I go to one of the others so she can calm down. This system works very well for me so I plan to keep it for as long as it works....

My point is, That the only way to make a marriage or relationship work with a chronic illness is to have a big group of supportive people( for me women ) so all the stress doesn't end up piled onto one person....

Good Luck!
wasthere is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (01-23-2014)
Old 01-23-2014, 06:08 AM #17
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Well said Lottie

My husband and I (why does that make me think of the Queen's cut-glass accent?!) have recently discovered table tennis We play a little every day, and both love it. We are both pretty competitive and get some good rallies going, and have a good laugh too. At the end, we always hug and kiss, and it brings us closer every time. Aww.

Plus, as a bonus, it gets my cardiac activity up a bit without wrecking my legs

Three cheers for anything that makes us laugh with those special people It's the little things...

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (01-23-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Please help my marriage!!! Cricket183 Caregivers Support 10 09-10-2013 08:54 AM
Is my marriage over? iowagal Caregivers Support 4 06-02-2011 10:50 AM
Perfect Marriage Darlene On the Lighter Side 1 08-02-2008 05:23 PM
too young for marriage? lou_lou On the Lighter Side 2 02-22-2007 07:12 AM


All times are GMT -5. The time now is 09:49 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.