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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Chills...???

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Old 01-22-2014, 01:45 PM #1
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Hey Nanc,

I am sorry you are having such a rough time of it! Near the area of nerve damage that caused my CRPS II if I touch that area it will send an ice cold rush down that nerve path even though it feels as if the skin has been removed and someone is pouring alcohol or salt on it BURNING constantly. I really hope that is just your sensory nerves healing normally. One thing you might want to do right away is start desensitizing that area by touching and stroking it with a flat palm, soft cloth etc., this will help the nerves respond to good stimulation and can help reduce numbness that often occurs after surgery along the incision site. I remember my doctor telling me that spread should be treated as a new diagnosis and treated aggressively as soon as symptoms start. That is what I am doing with my arms and they haven't worsened as quickly as my opposite leg.

Sure hope you turn a positive corner soon!!
Sorry to side track this thread, but I have that exact sensation on my original location. Of course I'm not glad for either of us, but when I try to explain this people look at me as if I've become just overly dramatic. It feels as if there's a new incision with tabasco sauce poured in. Thanks for the insight about spreading.
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Old 01-22-2014, 01:48 PM #2
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Nanc, are you keeping notes on your symptoms? Please remember your
Vit. C and maybe a heating pad on the site?
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Old 01-22-2014, 01:57 PM #3
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Nanc, are you keeping notes on your symptoms? Please remember your
Vit. C and maybe a heating pad on the site?
Hey Di! I am keeping notes for a change (trying to get better with that). I cannot take Vit C because of my interstitial cystitis (it irritates my bladder ). Dr told me not to use heat on the incision sites because of the allergic reaction, heat will make the reaction worse. But maybe I can use heat after they heal up. My sister-in-law gave me a really cool heat pack for Christmas
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Old 01-22-2014, 02:22 PM #4
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Hey Di! I am keeping notes for a change (trying to get better with that). I cannot take Vit C because of my interstitial cystitis (it irritates my bladder ). Dr told me not to use heat on the incision sites because of the allergic reaction, heat will make the reaction worse. But maybe I can use heat after they heal up. My sister-in-law gave me a really cool heat pack for Christmas
Oh Nanc, I'm sorry I should have remembered that. Please forgive the "duh"
moment? And of course you're still very early from surgery for any heat.
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Old 01-22-2014, 02:23 PM #5
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Nanc, I love the idea of a really cool heat pack

Hope you're doing ok today x

Bram,
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Old 01-22-2014, 02:41 PM #6
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Nanc, I love the idea of a really cool heat pack

Hope you're doing ok today x

Bram,
You like that huh Bram haha!

And thanks, I am doing ok. I finally slept this morning, so that helps. Was up again last night with the itching. I think the bacitracin is irritating me now...argh! But I can see that they are drying up even more, so that it good! Having a lot of discomfort in that front incision, still. I am impatient and need to listen to my body and continue to relax
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Old 01-22-2014, 03:01 PM #7
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You like that huh Bram haha!

And thanks, I am doing ok. I finally slept this morning, so that helps. Was up again last night with the itching. I think the bacitracin is irritating me now...argh! But I can see that they are drying up even more, so that it good! Having a lot of discomfort in that front incision, still. I am impatient and need to listen to my body and continue to relax
Can you try using Caladryl around (lol... not on) your incision to help with the itching? Or see if you can take Hydroxyzine for the itching? That is what my doctor gives me for my medication & latex allergies and both work pretty well and the Hydroxyzine helps also with sleep. The caladryl is especially soothing if you get raised bumps with your rash like I do.. grrr so annoying! I feel bad for you and hope today is better.

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Old 01-22-2014, 02:42 PM #8
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Oh Nanc, I'm sorry I should have remembered that. Please forgive the "duh"
moment? And of course you're still very early from surgery for any heat.
No need to apologize...I appreciate the concern and suggestions
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Old 01-22-2014, 02:56 PM #9
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Honestly Nanc, try the Manuka honey...it's very good at healing skin, and if that incision site is still giving you a lot of grief, it's worth a try.

Glad you managed to sleep a little

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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Old 01-22-2014, 03:02 PM #10
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Quote:
Originally Posted by Brambledog View Post
Honestly Nanc, try the Manuka honey...it's very good at healing skin, and if that incision site is still giving you a lot of grief, it's worth a try.

Glad you managed to sleep a little

Bram.
Thanks for the reminder about that honey Bram! I was going to look it up and forgot what I was doing...I swear my mind is so much worse right now
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