That's a tricky one Sage... From what I've read, Raynauds phenomenon can occur within CRPS, as well as as a separate disease of its own. Something to do with whether it's primary or secondary Raynauds. I'm pretty sure I don't have Raynauds, the only similarity really is the cold blueness of my skin sometimes, but that is a definite part of the CRPS symptoms. I don't get the other Raynauds symptoms as far as I know!

But thanks for asking the question :) It's always good to explore a different idea with this. You never know when something just might make a difference...

Bram.

Bram, just wanted to let you know that I have been thinking about you and hope you are on your way out of this flare. My post has to be short, not having a great day myself and we are gonna attempt going out today. Visit in-laws and go the the store :eek:

Take care,
Nanc
:hug:

Thanks Nanc :)

I'm sorry you're having a rough time of it too, it's horrible when you've got to get ready and go out...when all you really want to do is crawl into bed and sleep (if at all possible)... Hope everything goes well and you feel ok with it all.

Just got back from the last outing today. I'm shattered now! My feet are burning like crazy, my back is making me walk like a bow-legged old sailor :eek: and my knees are fat balloons. Glad to be back on my sofa! Had a weird thing just now - my finger on my right hand went all hot and fat, and I washed my hands after going in the bathroom. I happened to look at my hand while washing, and my whole hand was wet, finger pads and all - except the one that was hot. The pad area to the second knuckle halfway down was completely dry. It looked so odd, the water just wouldn't stick!

Take care everyone and I hope you all sleep well tonight. I'm feeling a little more myself today, despite the obvious stuff, so I'm hoping the worst is over. Thank you all over again lol :hug:

Bram.

Thanks Bram. We went to my in-laws and then to BJ's (a wholesale club). We needed to go to the grocery store after that, but I couldn't do it. My husband said no way! Said he could see the pain in my face. I completely overdid it. I was taking prednisone for the allergic reactions and now I am having shortness of breath. I cannot tolerate much as far as steriods go, so I thought I would try a low dose of it. I guess it helped the reactions calm down, but these side effects or whatever you want to call them, are not so great.

Glad you made it through you outings, sorry it was so hard on you. Hopefully the worst is over and you can rest up and get over this flare.

That is really odd about your hand. Sorry, I can't remember, do you have CRPS in your hands or arms? I would definitely keep an eye on that hand! So bizzare!

Hope you get some sleep tonight and wake feeling better!
Nanc
:hug:

Bram, great job being there to celebrate with your daughter! I have a 14 y.o. daughter and I work really hard to try and keep her world as normal as can be. Your daughter will have good memories from this birthday! :-)

Ut oh, :( I’m late on this. I am so sorry Bram honey, for being late and for the way you’ve been feeling lately. It is more difficult than anyone who doesn’t have this would ever know to push through a flare up; mentally or physically. How we try to keep living our life to the very best of our abilities in spite of it all. Man oh man have I been in touch with that lately.

I know you wanted to feel better on your daughter’s birthday. This damn disease gets in the way of everything, doesn’t it? All the damn time it seems. Grrr! Regardless, it sounds like she had a great birthday and is none the wiser to how hard it was for her mom try push through the celebration and try to enjoy it with her.

Perhaps there was some time well spent just getting to hang out for a while with your husband. Sounds like he’s trying to help. Of course they are men and not women or mom’s, so they are doing the best they can or know how to I think.

It’s simply and utterly amazing the sheer volume of pain we endure on a daily basis. Especially when it peaks, we want so desperately for the world to understand. How do we explain the unexplainable? The invisible? And yet, we pick ourselves up.. again.. and again…. And carry on. No easy thing, but we do it.

I’m glad it is starting to settle down a bit; crps and the weather. I hope you’re able to get some rest, and some good sleep. Again, I’m sorry that I was late on this. I’ve tried at least three times today to finish this and click reply <sigh>

Thanks Vrae :)

...

I'm sort of a bit better, sort of not...I can't really describe it very well. I feel a bit weird tbh. I have an hour or so where I feel OK-ish and think I'm on my way back, and then I can feel completely wiped out. Earlier on, I felt ok and did some tidying and made a sandwich for lunch, sat down and started eating, suddenly overcome with nausea and tiredness. Not like me at all, and nothing I hadn't eaten before.

I woke this morning with a big fat lump of swelling over my left knee. Normally at night most swelling will dissipate. I've been having some deep throbbing pains in my left leg at times, then the burning more surface ones more often especially when I rest up for a bit.

Hey ho. What weird things this disease does to us... I know you guys get it.

Is there anything I should/shouldn't be doing right now? I spoke to the doc the other morning, he wasn't concerned :rolleyes: so nothing to pursue there. I'm just generally tired at the moment, tired of fighting the pain so much. I want a break...

Don't we all, hey? ;)

Hope you guys are all doing ok. I never forget all you good folk out there having it tough too and still giving your time and support to us on this site.

Bram :hug:

Hey Bram! Sorry you are having these additional issues going on. It is so hard to tell sometimes if it is CRPS or something else. But, with this delightful monster, things that happen are usually related :(

Maybe you need to relax and rest a little more. After all, you are getting over a pretty major flare. Sometimes I think I am feeling ok enough to do a few things and I start doing them and then have to immediately stop and sit. For this, I am suffering terribly today.

I sure hope you will get past this nausea too, such an awful feeling.

Take care,
Nanc
:hug:

Hi Bram!
You deserve a good long rest. Fighting the CRPS flare, taking care of home and family, hosting your daughter's birthday........and, and, and. it all takes a LOT of energy. Your body can only cope with so much at one time. If you had the flu you would take to your bed and recover. This is no different. In fact, its more important. Give yourself the permission to get some solid rest.
~ Lottie:hug:

I like this and couldn't agree more. It (rest/sleep/recovery) is required, imo. That sucks when trying to keep pace with kids still at home, a home to keep up, work/job, etc. For me, balance is becoming impossible. CRPS is winning right now.