NeuroTalk Support Groups - Flare of epic proportions...

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Flare of epic proportions... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/200104-flare-epic-proportions.html)

Thanks Nanc you lovely girl. You're all lovely :) so kind and caring and snuggly and warm....aww.

Yes it's weird isn't it? So many of us. I blame this succession of weather systems brewing round the States and then coming over here loaded with Atlantic water. Yikes. The barometer is going up and down like a frickin yo-yo. And the pain ramps up with every change... Wtf?!

My now lovely super supportive and snuggly husband (bless him, he does try hard) has just brought me in a big bag of Cadburys pebbles. Omg it's fatal. I have just had a glass of wine, and am now on a cup of tea and a chocolate overload :D Can you get drunk on chocolate? Maybe I'll find out.

I still feel crappy, but I'm smiling a bit because you care and it means the world. Thank you thank you.

Hope you guys are doing ok this evening too, let's all hang in there together shall we lol?

Bram :grouphug:

Have your lovely husband fire up a toasty fire to warm you!

Quote:

Originally Posted by Brambledog (Post 1049512)

Awful day, after a bad night. Lots of pain, pretty much everywhere, feeling very blue and fed up with it all. No one seems to care how I feel, family being careful but no one asking about it, like they just don't want to go there....crumbs I hate it all. Sitting still makes things burn and ache and hurt, but I can't move about for more than a few minutes before my knees and hips just hurt too much.

Why us, hey? Why not the bad people, the cruel people, the greedy people? Ah, the great unanswerable questions :rolleyes:

Take care everyone, hope you're doing better than me today.

Bram.

I have been so bad I have not been on much,,Sorry I sure hope everyone out here gets feeling better soon..I wonder---Has everyone been having the last 3 weeks from you know where???I have and it sounds like others have..I feel so bad for you all.But the one best thing,we are not alone..Love ya all ..we are FAMILY here..and are deeply needed..:grouphug:

Quote:

Originally Posted by Vrae (Post 1049524)

Oh Bram darling, I/we care… so very much! I do know how you feel though. There was a time when I said to my husband; I know everyone else has just gotten use to my being in pain all the time, but that doesn’t mean that I have. It can seem like they just become oblivious, or apathetic. :rolleyes: I’m so sorry hon.

I too have been in the dumps this week. I believe it is days and degrees of tolerance of all things CRPS. The pain can be so devastating. The why’s of it all can be maddening. Try, try, try to keep your thoughts from there. Ahhhh… oooommmmm… okay never mind. Chocolate, stat! Oh Bram, sure wish I could give you a gentle hug. :hug: Please know that I really do care, and you’re gonna make it through this! Hang on girl!

My thoughts are with you..You never get used to this pain 24 hours 7 days a week..hang strong..God Bless:hug:

Moosey I'm so sorry you're having a bad time too....so many of us struggling at the moment :confused:

Take care of yourself, and thank you for your kind thoughts. Everyone is so supportive...it's immensely kind and always lofts my spirits a bit :)

Bram :hug:

Saw your post and thought of this and thought of you.

Sorry. I'm new on here so apologies if I haven't done this correctly. I read your rant and felt your anguish. Nothing can really be done to change it all but I guess somehow what you are going through will change you. The trick is to believe there is a reason and that the reason has some kind of meaning which will eventually turn to your good. Easy to say I know and hard to hold on to. In the meantime, prayers and thoughts are with you.

Quote:

Originally Posted by Brambledog (Post 1045905)

WARNING: Angry rant / pity party.

I don't know what the heck is going on with the weather here in the UK, but there's another storm coming in, the barometer is dropping, and every cripsy bit of me is shouting loudly tonight...

The last couple of days this has been coming on, I've been feeling crappier by the day. My body doesn't know what to do, my temperature regulation is all over the shop - I'm freezing cold, but the heating is right up, my knee is blue cold, my shin is red and hot. My whole left leg is burning from lower back down to the purple corpse-like tips of my toes. My hips and back ache. My original site (left knee) is alternating between fiery hot and icy cold every few minutes. A new region, the left side of my groin FFS, is acting all kinds of crips. My R (unaffected) knee feels hot and sore. My hands ache, my arm skin is hyper sensitive. My side burns, all the way up the side of my neck and into my hairline. My head aches, the skin between my eyes is permanently furrowed with lines from pain. I feel about a hundred years old.

I hate it hate it hate it. My cheerful outlook has deserted me tonight and I just want to burst into tears. Wouldn't do much good, so I'm doing the traditional VENT out to all you kind folk who I know:

A) get it.
B) have experienced this kind of crap and lived through it.
C) give two hoots.
D) aren't going to patronise me.
E) know more than pretty much every single frickin useless doc out there.

Like all of you, my normal persona hides a lot of pain. Tonight the mask is off. This is me. And I want it to stop.

Bram.

Thank you SLH100, I appreciate your kindness a lot - welcome to the forum. Do you have CRPS yourself? If so, I hope you are having a good day today.

I am dealing with my illness just like everyone else here, but I don't seek a reason for it. The kindness of people like yourself who take the trouble to write a line and think of me is enough, and every little bit of understanding on this forum is worth gold :)

Bram.

Wel I've lost it. Hip pain is horrific today every move I make, burning and shooting down my leg and around my crappy knee too. Burst into tears after even playing piano made it worse, no relief in any position. Don't know what to do with myself, poor husband and daughter don't know what to say so say very little...I hate this damn disease, it's so awful on a bad day, you just can't put those feelings and emotions into words.

Hope you guys are doing ok, hope someone out there in the research world is pushing hard to find a way of relieving this pain...

Bram.

Quote:

Originally Posted by Brambledog (Post 1050183)

I am so sorry to be reading this Bram. Was just thinking about you and was so hoping that things were improving :(. I really wish there was something that would relieve this horrific pain for you...I know you wish this too. Take is easy and hope you get some relief VERY soon!!

I sure hope someone out there is the research world is working on this too. Somethings gotta give!

Gentle hugs,
Nanc
:hug:

Thank you so much Nanc x