Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-29-2014, 04:01 AM #31
Brambledog Brambledog is offline
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Thanks you guys I am trying to R&R lol, where I can...

So many of us are also flaring right now, I do hope this calms down quickly for everyone affected, it's so hard to fight through the days... I could have easily stayed in bed this morning, but I always get up, shower and dress whenever I can, because I don't know how long a flare will last, and I can't leave my youngest to get ready and get off to school alone - she's very capable, bless her, but I want her to have as much of me as possible. I rest when she has gone!

My left shin is burning up right now, and it's only 9am!! Where's my easier morning time lol?! Darn crips

Take care Nanc, Vrae and Zook and anyone else having a flare...hope your day is a little better. I blame all this bizarre weather...

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 01-29-2014, 09:48 AM #32
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Aw im sorry Bramble . I also have major temperature issues. My mom says I have "manopause" LOL. Anyway I also get these things I call them the "bee stings" and my body also has major temp issues. It is 81 degrees outside and I am freezing, then I could walk into my house and be too warm, etc. Like when I'm driving (about to get my license), my mom always has to change the air conditioning at least every 5 minutes from cold to hot! I hope you enjoy my response as I did writing it hehe.
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Old 01-31-2014, 04:29 AM #33
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I thought of you last night crpsage16 I had a long batch of those bee stings (great description!) while lying in bed wishing I could get to sleep.... I hate those things. Hadn't had them for a while.

We have a another big low pressure storm system coming in here, and I can feel things worsening again with the pressure dropping. I was starting to feel perhaps the worst was over, and now I feel I'm being pulled backwards again. What a weird, distressing, cruel and exhausting disease this is. Sigh.

I hope all of you are doing ok today and that everyone's recent flares are maybe starting to settle. If not, then stay warm and have that mug of hot chocolate

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 01-31-2014, 12:56 PM #34
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Quote:
Originally Posted by crpsage16:( View Post
Aw im sorry Bramble . I also have major temperature issues. My mom says I have "manopause" LOL. Anyway I also get these things I call them the "bee stings" and my body also has major temp issues. It is 81 degrees outside and I am freezing, then I could walk into my house and be too warm, etc. Like when I'm driving (about to get my license), my mom always has to change the air conditioning at least every 5 minutes from cold to hot! I hope you enjoy my response as I did writing it hehe.
HEY CRPSAGE16! Haven't heard from you in awhile! How are you doing? Are you able to see your friends and get some schoolwork done? Wishing you wellness!
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 01-31-2014, 01:07 PM #35
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HI everyone! So sorry so many of us are flaring. I guess it's the time of year? Here on the east coast of USA it has been one of the coldest darn winters in decades. And, it hasn't even been that much snow, just FREEZING! Bram - I have been trying to watch the barometer for a connection with my pain intensity, but I haven't put one together yet. Seems to be random, or at least I haven't been able to figure it out.

OK, so you asked for a chuckle to lighten your day......this one is going to be really silly......like 7 year old silly. Ready?

If the South Pole is in Antartica, where is the North Pole?



Uncle-artica!!!

HA! You can't say I didn't warn you! :-)
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Old 01-31-2014, 02:47 PM #36
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Lottie, you marvellously nutty muppet

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-07-2014, 09:01 AM #37
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Awful day, after a bad night. Lots of pain, pretty much everywhere, feeling very blue and fed up with it all. No one seems to care how I feel, family being careful but no one asking about it, like they just don't want to go there....crumbs I hate it all. Sitting still makes things burn and ache and hurt, but I can't move about for more than a few minutes before my knees and hips just hurt too much.

Why us, hey? Why not the bad people, the cruel people, the greedy people? Ah, the great unanswerable questions

Take care everyone, hope you're doing better than me today.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-07-2014, 10:12 AM #38
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Oh Bram darling, I/we care… so very much! I do know how you feel though. There was a time when I said to my husband; I know everyone else has just gotten use to my being in pain all the time, but that doesn’t mean that I have. It can seem like they just become oblivious, or apathetic. I’m so sorry hon.

I too have been in the dumps this week. I believe it is days and degrees of tolerance of all things CRPS. The pain can be so devastating. The why’s of it all can be maddening. Try, try, try to keep your thoughts from there. Ahhhh… oooommmmm… okay never mind. Chocolate, stat! Oh Bram, sure wish I could give you a gentle hug. Please know that I really do care, and you’re gonna make it through this! Hang on girl!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 02-07-2014, 10:21 AM #39
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Thank you so much Vrae

I have chocolate and hazlenuts by me right now, absolutely essential today. My husband is here now and out doing things in the garden bless him. I know he just finds it hard to know what to do for the best when things are bad for me, but yes your saying about not being used to being in pain is right on the money... Poor chap just doesn't know what to do. I'd find it tricky myself. He's normally very good, bless.

Sorry you're feeling crappy too, hope things aren't too bad today. IHugs back to you too....they don't hurt lol...

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-07-2014, 01:11 PM #40
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What is going on here?? Seems like a lot of us are having an especially difficult time right now. Just when I think it can't get any worse, it does. I know I shouldn't think that because everything can always get worse...but seriously, like this pain is not bad enough?!?

Bram, so sorry you are having yet another rotten day! Vrae is right, we do care! We care a lot...and I wish I could give you a gentle hug too. I know what you mean too, my husband is great but there are so many times that he does not know what to do.

Vrae, sorry that you are having a rough time too! Gentle hugs to you as well

I hope our days start to improve VERY soon!

Nanc
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