Oh, Bram, I'm sorry you keep having such a rotten time. You really are on a roll lately. I hope that you get some relief soon.

I know what you mean about trying to articulate what you are feeling on the worst days. I think that as understanding as our other halves try to be, I can't see how they could really understand. I don't think I could have imagined it before I experienced it. I'm not sure I've really wrapped my head around it yet, myself.

Hang in there and keep fighting the good fight, even when fighting means just continuing to breathe.

Thanks Kim, that's so nice of you Hope you're doing ok.

Bram.

Oh Bram...I am so sorry you are having such a rough time right now. It really sucks that you just can't seem to catch a break lately. You're in my thoughts and I hope you start to feel better soon.

Thanks catra honestly don't know what I'd do without you all some days x

My hip is still awful, still can't get comfortable anywhere. Grr. On a whimsically delightful note, overnight my shoulder joint has started hurting in a very similar way - it doesn't feel like a draught/muscular thing, but the joint itself aching. And it's not even on my left side where my CRPS is - its on the right!!!!!!! OMG will this ever end?

The weather here is ridiculous. There is water everywhere. Ive had to cancel my work the last two days as pupils just can't get in easily. It's cold and wet, and it's only getting worse out there.

If I had any cash laid by, I'd be on a plane to somewhere warm in a flash. I hate this. I'm trying to get my positive mood back, but it's tricky right now!

Thank you everyone who has spared a moment to pop in here and boost me up, it's such a help, as I know you know

Bram

In December my boyfriend's nephew accidentally kicked my left (RSD) ankle while rough housing with my boyfriend. After that...the RSD pain spread up to my left hip (highest it went before on that leg was my knee)...and it's been bothering me ever since. I am a total "jeans and t-shirt" type of girl and I haven't been able to wear jeans (or any normal pants) in months because of it (except for my oversized flannel lined jeans that are literally 2 sizes too big that I wear for fishing). Everyone at work keeps commenting on how cute I look these past few months with my leggings and long tops (very trendy). I sort of want to scream in those moments because there is no way they can understand that the reason I am wearing leggings is because the pain is too bad to wear anything else. Even with the leggings...that pain in the hip area is barely tolerable.

I am hoping that when the weather gets better that I will see some improvement with the pain. This has been a ROUGH winter. We've gotten over 5 feet of snow, had multiple days with wind chills at -30F to -50F. Just such a crummy winter that feels like it will never end. But spring will be here before we know it, right?

I keep telling myself that catra!!

Wow, the reasons some folk like yourself have either had spread or started CRPS in the first place are just so mad. Cruel, almost ridiculous that you can end up with such a nightmare situation as a result of something normally minor. It's why I'm so nervous of hurting myself now...yikes. Hope you're doing ok today though.

Bram.

These post just brake my heart reading about all the pain everyone is in..And the bad thing is how and when will it stop..So sorry you guys are bad off too..it is so strange how something so small could end up this this..God bless you all.Please get feeling better soon..Keep warm and toasty it might help..

Can hardly move today, hips and back awful, really down and fed up, can't get comfy, don't know what to do, floods everywhere here, can't get to docs easily. Gonna take some major pain meds in a mo but they don't usually work so have fingers crossed. Had bad arrhythmia all evening yesterday, weird and unsettling. Crumbs guys, life has shrunk!

You all ok? Take care out there xx

Bram.

Take care and take it easy today Bram. I will be sending good thoughts your way and hope you feel better soon.

Saw docs, had ECG, heart is ok, thinks the arrhythmia is caused by all the pain... I'd laugh if it weren't so unfunny!

Have inflammation and 'problems' with my sacro-iliac joint. Asked him if it could be anything to do with the CRPS, and he went...."C, R,..?" I said the full name and he said 'oh right' in a careless way. Examined my hip movement, always fun anyway , but he was really hands on, quite rough, and didn't ask or warn me when he grabbed my CRPS knee and thigh with his cold hands. Asking me if it hurt when he was yanking my leg around. Why yes it did hurt. When he pressed bits of my SIJ it was horrendous pain and hot burn, so he was pretty content with the dx.

I asked if the CRPS had any link and he was very dismissive of the idea. Hmm. Hard to take that seriously when he wasn't sure what it was... I have some voltarol gel stuff for it, and regular paracetamol (I laughed hollowly). Must avoid bending and twisting. Lol. Tell my kids and pets that. He thinks it will subside in a few weeks time.

Oh it hurts such a lot. No position is comfortable. Sitting on the sofa is very bad, but that's best for when I rest my feet and legs. Ho hum. Going to have to lie down upstairs....on my own. Boo.

Hope you guys are doing ok x

Bram