Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-07-2014, 09:01 AM #1
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Awful day, after a bad night. Lots of pain, pretty much everywhere, feeling very blue and fed up with it all. No one seems to care how I feel, family being careful but no one asking about it, like they just don't want to go there....crumbs I hate it all. Sitting still makes things burn and ache and hurt, but I can't move about for more than a few minutes before my knees and hips just hurt too much.

Why us, hey? Why not the bad people, the cruel people, the greedy people? Ah, the great unanswerable questions

Take care everyone, hope you're doing better than me today.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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moosey2me (02-09-2014)
Old 02-07-2014, 10:12 AM #2
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Oh Bram darling, I/we care… so very much! I do know how you feel though. There was a time when I said to my husband; I know everyone else has just gotten use to my being in pain all the time, but that doesn’t mean that I have. It can seem like they just become oblivious, or apathetic. I’m so sorry hon.

I too have been in the dumps this week. I believe it is days and degrees of tolerance of all things CRPS. The pain can be so devastating. The why’s of it all can be maddening. Try, try, try to keep your thoughts from there. Ahhhh… oooommmmm… okay never mind. Chocolate, stat! Oh Bram, sure wish I could give you a gentle hug. Please know that I really do care, and you’re gonna make it through this! Hang on girl!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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moosey2me (02-09-2014)
Old 02-07-2014, 10:21 AM #3
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Thank you so much Vrae

I have chocolate and hazlenuts by me right now, absolutely essential today. My husband is here now and out doing things in the garden bless him. I know he just finds it hard to know what to do for the best when things are bad for me, but yes your saying about not being used to being in pain is right on the money... Poor chap just doesn't know what to do. I'd find it tricky myself. He's normally very good, bless.

Sorry you're feeling crappy too, hope things aren't too bad today. IHugs back to you too....they don't hurt lol...

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Vrae (02-07-2014)
Old 02-07-2014, 01:11 PM #4
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What is going on here?? Seems like a lot of us are having an especially difficult time right now. Just when I think it can't get any worse, it does. I know I shouldn't think that because everything can always get worse...but seriously, like this pain is not bad enough?!?

Bram, so sorry you are having yet another rotten day! Vrae is right, we do care! We care a lot...and I wish I could give you a gentle hug too. I know what you mean too, my husband is great but there are so many times that he does not know what to do.

Vrae, sorry that you are having a rough time too! Gentle hugs to you as well

I hope our days start to improve VERY soon!

Nanc
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Old 02-07-2014, 03:14 PM #5
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Thanks Nanc you lovely girl. You're all lovely so kind and caring and snuggly and warm....aww.

Yes it's weird isn't it? So many of us. I blame this succession of weather systems brewing round the States and then coming over here loaded with Atlantic water. Yikes. The barometer is going up and down like a frickin yo-yo. And the pain ramps up with every change... Wtf?!

My now lovely super supportive and snuggly husband (bless him, he does try hard) has just brought me in a big bag of Cadburys pebbles. Omg it's fatal. I have just had a glass of wine, and am now on a cup of tea and a chocolate overload Can you get drunk on chocolate? Maybe I'll find out.

I still feel crappy, but I'm smiling a bit because you care and it means the world. Thank you thank you.

Hope you guys are doing ok this evening too, let's all hang in there together shall we lol?

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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moosey2me (02-09-2014), Nanc (02-07-2014)
Old 02-08-2014, 10:47 PM #6
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Have your lovely husband fire up a toasty fire to warm you!
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 02-09-2014, 10:17 PM #7
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Quote:
Originally Posted by Vrae View Post
Oh Bram darling, I/we care… so very much! I do know how you feel though. There was a time when I said to my husband; I know everyone else has just gotten use to my being in pain all the time, but that doesn’t mean that I have. It can seem like they just become oblivious, or apathetic. I’m so sorry hon.

I too have been in the dumps this week. I believe it is days and degrees of tolerance of all things CRPS. The pain can be so devastating. The why’s of it all can be maddening. Try, try, try to keep your thoughts from there. Ahhhh… oooommmmm… okay never mind. Chocolate, stat! Oh Bram, sure wish I could give you a gentle hug. Please know that I really do care, and you’re gonna make it through this! Hang on girl!
My thoughts are with you..You never get used to this pain 24 hours 7 days a week..hang strong..God Bless
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Old 02-10-2014, 05:48 AM #8
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Moosey I'm so sorry you're having a bad time too....so many of us struggling at the moment

Take care of yourself, and thank you for your kind thoughts. Everyone is so supportive...it's immensely kind and always lofts my spirits a bit

Bram
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-09-2014, 10:15 PM #9
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Quote:
Originally Posted by Brambledog View Post
Awful day, after a bad night. Lots of pain, pretty much everywhere, feeling very blue and fed up with it all. No one seems to care how I feel, family being careful but no one asking about it, like they just don't want to go there....crumbs I hate it all. Sitting still makes things burn and ache and hurt, but I can't move about for more than a few minutes before my knees and hips just hurt too much.

Why us, hey? Why not the bad people, the cruel people, the greedy people? Ah, the great unanswerable questions

Take care everyone, hope you're doing better than me today.

Bram.
I have been so bad I have not been on much,,Sorry I sure hope everyone out here gets feeling better soon..I wonder---Has everyone been having the last 3 weeks from you know where???I have and it sounds like others have..I feel so bad for you all.But the one best thing,we are not alone..Love ya all ..we are FAMILY here..and are deeply needed..
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