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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | ||
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I think I first posted about my gel a couple of years ago. I still use it. at that time it was from custome meds now call snyders. I still use the basic compound and the doctor creted a second mixture for me to treat my lesions with . it has been very effective. Especially for alloydina and the severe pain of lesions. Good luck. CZ
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#12 | ||
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Hi I have used the exact cream your using & one that was more expensive with more meds in it. I liked the one you are using betterr & didnt really see any benefit to the other. I could use mine 4 times a day. You just have to rub it in until its gone so the med gets into you good. It helps but I admit I am bad about using it because it kind of smelled funny & was sticky. I am really suprised you can't use it more often. That just seems really strange to me. Hope it works for you.
Hugs, Denny |
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#13 | |||
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Member
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Denny,
thanks for the information. I have been using it more, but that is only after I got over my fear of it. I use it on my scs battery site as it hurts so much now. You are so right, it is soooo expensive. but I do take it off on my taxes under medical expense. And there is only one pharmacy that does compounds, and that is about 75 miles on way, so of course, mileage is a deduction also. hugs Mary
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There is no future, there is no past, we must make each moment last |
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#14 | ||
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Junior Member
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Hi All,
I once had the ketamine cream with the meds. in it and the compounding pharmacy would mail the cream to me. I would give them my insurance information over the phone and I would pay what ever co-pay or balance I owed with a credit card over the phone. They may ask you to fax your insurance card. If I remember correctly my doctors office faxed the first RX and they gave them my insurance information. Maybe try this instead of driving. Hope this helps. Good luck, Ann |
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#15 | ||
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Junior Member
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I jus recieved this compound only one drug store makes compunds in my city mine is ketamine lidicain and one other , it is one of many I am on for crps, tos, winged scapula and sadly medical malpractice dr admitted to removeing the wrong ribs bt I cannot sue because I am on work safe, this s the last resort before they put me on methadone for pain
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#16 | ||
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Member
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I've been using a ketamine compound cream for a bit now. The only time it helps is if I use a heating pad and get my leg and foot warmed up really well, put the cream on then back under the heating pad. It's crazy the different reactions we all have to treatments.
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#17 | ||
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Junior Member
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yes, have used ketamine cream in the past and the helped helped reduce my pain. Volteran gel also works great for my pain.
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