Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 01-30-2014, 02:22 PM #1
chaos's Avatar
chaos chaos is offline
Member
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
chaos chaos is offline
Member
chaos's Avatar
 
Join Date: Jun 2012
Location: NorCal
Posts: 332
10 yr Member
Default Pain pump complications

Sorry I haven't been on here lately, I've been dealing with the worst headache I've ever had. It started 10 days after the pain pump was put in. They gave me a migraine med, it didn't help, told me to try percocet, that didn't help, I tried every migraine therapy I could, nothing helped except MMJ. It felt like I had an axe in my head and was sobbing.

Got a blood patch two days ago. Got dizzier, but the axe went away. Saw the doc yesterday and she said it'll probably take a while to get better, just rest and more rest.

I was bothered by the fact that she said they normally wait 12 whopping weeks to do the blood patch. I just whined enough to get it done earlier, plus I know my body and knew it wasn't a normal migraine. I told them I'd go to the ER if they didn't fix me, and they said they didn't trust the docs at the hospital.

I'm still dizzy, in theory because my pressure was off for long enough. Never found an actual leak, but the doc said something about meningeal irritation. I honestly think it happened because we had sex and something must have moved.

So I'm still dizzy, but finally back at work today. Hopefully over the next few days I'll be much better.
chaos is offline   Reply With QuoteReply With Quote
Old 01-30-2014, 03:30 PM #2
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Chaos, I'm sorry you've had such terrible head pains after your SCS...sounds horrendous you poor thing. I hope it eases off very quickly for you, and I'm glad you've been able to push for them to speed up the tests for you. Must be scary stuff.

Take good care of yourself and I'll have my fingers crossed for you.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 01-30-2014, 05:43 PM #3
anon6715
Guest
 
Posts: n/a
anon6715
Guest
 
Posts: n/a
Default

Oh Chaos, that sounds awful. I'm sorry you have being go through that. I'm glad you didn't let them wait 12 weeks for the patch though! That is far too long to be in that much pain.

Be extra careful while you are still dizzy. The last thing you need now is a fall.

Kim
  Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Who has a pain pump? chaos Reflex Sympathetic Dystrophy (RSD and CRPS) 8 05-04-2014 06:36 PM
MS, Chronic nerve pain and pain pump surgery Sissyt213 Medications & Treatments 1 01-23-2014 07:54 PM
Will pain pump work with multiple pain sources? magecharlie SCS & Pain Pumps 12 05-03-2012 09:12 AM
SCS vs. pain pump msdilbert2 SCS & Pain Pumps 27 11-06-2010 12:06 PM
Fever/severe distant pain as temporary LP complications? MaracaSalesman Hydrocephalus 0 08-29-2008 04:37 PM


All times are GMT -5. The time now is 08:59 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.