I wouldn't go by what a primary doctor said. They aren't pain doctor's and they don't see that condition on a regular basis.

I wouldn't worry about him just find a pain doctor if u can. The pcp should have suggested it right away. In my experience pcp's hate the word PAIN. Usually when I say that word they say "okay find a pain doctor". Like i'm a lepper.

Heather we are pariahs and lepers to most drs. Good analogy too lol.

Yep, that's been my experience too.

Yes. And YOU have got to be your own best help. Some docs may even want to learn from you, others not.

I don't want to be any doc's experiment or lesson. Either do you. Narrow down and find the RSD/CPRS people in your general area. Talk with them and compare notes.

Research your issue, decide things based on what you learn until you find a doc who is thoroughly knowledgable.

Do not get any invasive treatments! That includes injections. Once done, those treatments cannot be undone.

Thank you for all your replies. They are very helpful, Just a newbie here. Still trying to find info for my area. I live north east of Pittsburg Pa. in a small town, Vandergrift Pa. I do have a pain dr. new to her only seen her twice so far. got to do some research for my area.
Sage, what did you mean by injection treatment can't be undone. did you mean injections are a bad idea ? my pain Dr. hasn't brought injections up.
What is the best Dr. we who have RSD/CRPS should see is it a Neurologist? Thanks again

Hi lonewolf (I'm loving the name!)

Good advice here, as usual lol. Get a new doc who doesn't make you feel like this. You have enough to deal with already. As Sage said, be your own best advocate. Learn as much as you can about CRPS from reputable sites, and steer clear of the photographs as they show extreme cases and just scare you rigid.

It doesn't matter if the CRPS specialist is a neurologist or a pain specialist - just that they have recent experience with treating and managing CRPS, and most importantly that they treat you like a human being and not a tiresome little statistic cluttering up their office... You might have to see a few before you find one you like, but stick with it and don't let any fools tell you any of this is in your head or NOT CRPS. Knowledge is power. Learn lots and then you can confidently and politely say, I'm sorry, but I don't think that's a good idea for me. Bye.

Good luck and keep posting. We do understand how you feel

Bram.

You know what hurts, You know how You will react to certain situations. They aren't mind readers. You have to tell them what you're going through. They are human not God. Even if they have the gods compllex going on like your PCP they aren't. Don't let them make you feel like they are supreme beings. Fight for the care you need. I've been to 2 PM Drs so far the first only did injections, and he had a god complex. The one I'm going to now does both injections and meds. Oh yeah what Sage meant by no injections is things like cortisone injections. Now I've had a lumbar sympathetic block done and it was wonderful for a couple days. Research is your best friend with this. I've done a ton of research since April. Just keep looking for information. If a dr treats me like I'm a wast of good oxigen I tell them goodbye. This PM Dr im going to listens, and actually believes me. Thats a very important part of why I'm going back. Don't go to the nearest PM dr out of convenience. Go to the one that listens and knows this beast. There are good ones out there. You just have to weed out the jerks. Keep positive, and smiling.

You are right..good advice..