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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Anyone else in Milton Keynes

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Old 02-05-2014, 07:59 PM #1
Kevscar
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Default Anyone else in Milton Keynes
After the lack of support 1 person on here Brambledog out of 4 forums and 4 on facebook from 5 groups with 478 I came very close to walking away but there maybe 460,000 un/misdiagnosed in the UK and someone has to fight for them.
I've got MK News coming round tomorrow, they are also going to interview the MP and with their help we will raise awareness at least in MK. If you live here please help so we can get a series of stories going
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Allanira (02-05-2014), elyzabeyta (02-11-2014), PamelaJune (02-05-2014), Vrae (02-05-2014)
Old 02-05-2014, 09:17 PM #2
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Originally Posted by Kevscar View Post
After the lack of support 1 person on here Brambledog out of 4 forums and 4 on facebook from 5 groups with 478 I came very close to walking away but there maybe 460,000 un/misdiagnosed in the UK and someone has to fight for them.
I've got MK News coming round tomorrow, they are also going to interview the MP and with their help we will raise awareness at least in MK. If you live here please help so we can get a series of stories going
You're amazing! Period. Thank you for all that you are doing!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

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Old 02-06-2014, 06:58 PM #3
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I give you a lot of credit, Kevscar, for finding a way past your own pain to be able to raise awareness and fight for the benefits that RSD patients need.

Keep up the good work !
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Old 02-11-2014, 09:08 PM #4
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http://www.mkweb.co.uk/News/Health/R...0211090000.htm
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Old 02-12-2014, 02:05 AM #5
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Well done getting your story into the news Kevin. Onwards and upwards...

Bram.
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CRPS started in left knee after op in Aug. 2011
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