Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-05-2014, 07:59 PM #1
Kevscar
Guest
 
Posts: n/a
Kevscar
Guest
 
Posts: n/a
Default Anyone else in Milton Keynes

After the lack of support 1 person on here Brambledog out of 4 forums and 4 on facebook from 5 groups with 478 I came very close to walking away but there maybe 460,000 un/misdiagnosed in the UK and someone has to fight for them.
I've got MK News coming round tomorrow, they are also going to interview the MP and with their help we will raise awareness at least in MK. If you live here please help so we can get a series of stories going
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Allanira (02-05-2014), elyzabeyta (02-11-2014), PamelaJune (02-05-2014), Vrae (02-05-2014)
Old 02-05-2014, 09:17 PM #2
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Kevscar View Post
After the lack of support 1 person on here Brambledog out of 4 forums and 4 on facebook from 5 groups with 478 I came very close to walking away but there maybe 460,000 un/misdiagnosed in the UK and someone has to fight for them.
I've got MK News coming round tomorrow, they are also going to interview the MP and with their help we will raise awareness at least in MK. If you live here please help so we can get a series of stories going
You're amazing! Period. Thank you for all that you are doing!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (02-05-2014)
Old 02-06-2014, 06:58 PM #3
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

I give you a lot of credit, Kevscar, for finding a way past your own pain to be able to raise awareness and fight for the benefits that RSD patients need.

Keep up the good work !
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
Old 02-11-2014, 09:08 PM #4
Kevscar
Guest
 
Posts: n/a
Kevscar
Guest
 
Posts: n/a
Default

http://www.mkweb.co.uk/News/Health/R...0211090000.htm
  Reply With QuoteReply With Quote
Old 02-12-2014, 02:05 AM #5
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Well done getting your story into the news Kevin. Onwards and upwards...

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 05:05 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.