Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-14-2014, 05:51 AM #1
Brambledog Brambledog is offline
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Murgir, just wanted to wish u luck for the scopes and let you know I'm thinking of you. You are dealing with such a lot right now and I'll be hoping that everything goes well and that your docs can sort some treatment that helps you feel a lot better than you do now.

I had a lot of gastric issues on neurontin - it made me very sick and caused lots of pain in my GI. I came off it and was a lot better very quickly. My pain doc said it was nasty stuff and it wasn't uncommon to have GI problems on it. She said they always try it because if you tolerate it, it can often be quite effective. From what I've read since, if you have the GI issues, it's maybe not being absorbed very well anyway. I'm on low dose lyrica now, and before this flare it was doing a pretty good job cosidering...

Take care of yourself, and remember that you're never alone because we are here thinking of you and wishing you well

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 02-14-2014, 01:06 PM #2
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I too never heard that Neurontin was anti-inflammatory. Perhaps google it or call your pharmacist who also might be able to suggest how to wean off Neurontin if that IS necessary but substitute something else in its place for this procedure.
Good luck hon!
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Old 02-14-2014, 07:37 PM #3
birchlake birchlake is offline
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Gabapentin (Neurontin) is not an anti-inflammatory drug. There must be some other reason they want you off of it. I'd certainly verify what that reason is before going through the weaning process and then titrating back up after the test.

I agree with the others though that it does have a number of gastrointestinal side effects. I've been on Gabapentin for 6 years and I'm nauseated right now as I write this message!

It has its issues, but the drug really has been a godsend for me.
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Old 02-15-2014, 03:07 AM #4
murgir murgir is offline
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I called today and was told to keep taking Neurontin. Ya for now. I am ready to find out what is going on. Thanks again to all. Vrae you saved me a call to my neurologist.
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"Thanks for this!" says:
PamelaJune (02-16-2014), Vrae (02-15-2014)
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