Well it just keeps getting better....

My hip pain gradually got worse and involved my whole lower back, and I had these palpitations, saw the nurse, ECG fine, she said it was due to the pain and got me in to see a doc. Doc didn't know about CRPS, manhandled me doing the examination, said it wasn't my hip but my SI joint. Gave me an anti-inflammatory cream and to take regular paracetemol. It would take about 3 weeks to settle, no bending short distances, move where possible.

Well. Since then it's just got worse. I've been doing as told, but I'm struggling even to get upright from bed. To start with walking about was ok once I was up, but only for 10-15 mins and then it would hurt too much, plus my cripsy leg and foot would play up. I couldn't sit anywhere, so it was back to bed and lay as flat as I could, sometimes with my shoulders propped up so I could read.

This morning I couldn't get up. Had to get my husband to help pull me upright. Made it to the loo, but sitting was really bad, and the whole thing was a compete nightmare. Just made it back to our room, sitting back on the bed was awful, and laying back down again horrific. I'm in despair. I've taken more paracetemol but I honestly don't know how I'm going to get up again.

I know it's stupid, my husband says we should call the doc, but I'm dreading another disbelieving, manhandling cold indifferent doc, who has to be explained to about the CRPS and then won't believe it or my pain level. I've had to cancel another day of work and we really needed that money. I feel such a burden and a nuisance.

I don't know what to do. I'm lying here typing on my iPad for now, but my neck will start to ache and I'll have to lie flat again. I'm going insane.

Any advice really really appreciated.

Bram.