Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 02-17-2014, 02:12 AM #1
lonewolf's Avatar
lonewolf lonewolf is offline
Junior Member
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
lonewolf lonewolf is offline
Junior Member
lonewolf's Avatar
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
Confused Need some advice


Hi, I was diagnose with CRPS/2 last month. Had my injury July 2012 my right foot. The last 18 months had 5 different Dr.'s, 1 surgery (April 2013) told I have nerve damage (Sept. 2013). Have to walk with a cane, can't drive, can't work. I am on gabapentin 900mg 3X daily now & on Nucynta ER 50mg 2X daily for pain. This past week my pain is getting worse, going up my leg some, mostly on the back of my leg. my foot is swollen purple & very painful now. I don't see my pain dr. till March 12, should I call her about my pain? I can't find ways to clam the pain down, can't sleep much getting muscle cramps at nite. confused & don't know were to turn for help. My life is very stressful was in abusive relationship, have depression/PTSD on fluoxetine 40mg daily for that. Last Aug. was put on lisinopril 10mg/12.5mg 2Xdaily & metoprolol 25mg 2Xdaily for high blood pressure/high heart rate. I live with my Mom who has heart problems & parkinson. And my son(34) who has MD & bipolar. I'm the one who is to take care of them, now I have CRPS & can't do much these days. no income going for SSD waiting on hearing I'm just a mess & don't know what to do. Could use some advice please??????
__________________
May the Stars Carry your
Sadness Away, May the Flowers Fill Your Heart
With beauty, May Hope Forever Wipe Away
Your Tears, and Above All, May Silence make
You Strong.
~Chief Dan George~
.
lonewolf is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-17-2014)
Old 02-17-2014, 09:36 AM #2
Kevscar
Guest
 
Posts: n/a
Kevscar
Guest
 
Posts: n/a
Default

Sounds like a spread don't wait contact your Dr today
  Reply With QuoteReply With Quote
Old 02-17-2014, 11:40 AM #3
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Lonewolf

Don't hesitate to contact your doctor. March 12 is a long time to wait in pain. If he can't get you in, go to the ER. No sense in hurting more than necessary. The ER usually does treat until you can see your doctor. Hope your pain levels go down. ginnie
ginnie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-17-2014)
Old 02-17-2014, 08:23 PM #4
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
Default

Lonewolf,
I completely agree with Ginnie. Go to the ER. When you do; be sure to tell them you have an appointment in March with your doctor giving them his name. This way, they will contact him regarding any treatment, etc.


Gerry
ger715 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (02-17-2014)
Old 02-18-2014, 01:45 AM #5
lonewolf's Avatar
lonewolf lonewolf is offline
Junior Member
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
lonewolf lonewolf is offline
Junior Member
lonewolf's Avatar
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
Default


Thank you all so much for your advice. Calling my Dr. on wed. 19 she is in that day (only Wed.'s) Hope she can help me. Gotta take my mom to the DR. on Wed. too. Yea still in alot of pain but I have to go on with life & learn to live like this with pain, which I am not good with pain, LOL well what ya goin do.
Let ya know what the Dr. tell me. Thank you all
__________________
May the Stars Carry your
Sadness Away, May the Flowers Fill Your Heart
With beauty, May Hope Forever Wipe Away
Your Tears, and Above All, May Silence make
You Strong.
~Chief Dan George~
.
lonewolf is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-23-2014), ginnie (02-18-2014)
Old 02-18-2014, 01:49 PM #6
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default

The earlier months with this monster disease can be the scariest and it takes time to wrap your mind around how to cope. There are so many facets of this!
If you're female it's more likely to try to connect with all those facets at once & it gets overwhelming!
I'm glad you can get into the P.M. Dr. sooner. There are more treatment options
in addition to oral meds. I've tried so many of them. It's very individualized
with RSD/crps patients. My best help comes from nerve blocks. I was freaked out by that proceedure at first and they still make me anxious but now I'm going on 22 of them.
I read you'll keep us posted, please do. Hang in there.
__________________
RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
AZ-Di is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-23-2014), ginnie (02-18-2014), zookester (02-18-2014)
Old 02-19-2014, 12:02 PM #7
Russell's Avatar
Russell Russell is offline
Member
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Russell Russell is offline
Member
Russell's Avatar
 
Join Date: Feb 2011
Location: Blue Ridge Mnts of NC, USA
Posts: 680
10 yr Member
Default

Hi Lonewolf,
Ditto to what Ginnie says.
So sorry to hear of what you're going through. This monster that we all are going through really sucks big time.
I hope you find some kind of relief soon....
__________________
Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
Russell is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-23-2014), ginnie (02-19-2014)
Old 02-19-2014, 08:30 PM #8
lonewolf's Avatar
lonewolf lonewolf is offline
Junior Member
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
lonewolf lonewolf is offline
Junior Member
lonewolf's Avatar
 
Join Date: Jan 2014
Location: Vandergrift, PA
Posts: 38
10 yr Member
Smirk


Hi everyone & thanks again for your replies. Here is a update.
Call the Dr. today I have app. on Monday Feb. 24 instead of March 12. And
was told if the pain gets to bad to go to the ER. I'm to get a call in the
morning to check on me. Hope I can make it to Monday.
__________________
May the Stars Carry your
Sadness Away, May the Flowers Fill Your Heart
With beauty, May Hope Forever Wipe Away
Your Tears, and Above All, May Silence make
You Strong.
~Chief Dan George~
.
lonewolf is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (02-23-2014)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
help and advice Saffy SCS & Pain Pumps 10 03-24-2012 01:34 AM
New, and looking for advice JennJenn5366 General Health Conditions & Rare Disorders 2 03-20-2012 08:22 PM
Advice please.... KrisPPP Dentistry & Dental Issues 3 02-29-2012 07:22 PM
I need some advice IM Georgia Spinal Disorders & Back Pain 7 09-10-2011 11:11 AM
Need some advice! just maintain Spinal Disorders & Back Pain 1 07-29-2008 02:39 PM


All times are GMT -5. The time now is 04:05 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.