I have also had this for 42 years and it does go into remission, but can also come back,with AVENGENCE as you know. Many of my treatments and surgeries confused the picture for the first 20 years. However, I did have good years and times of function. My experience with Sympathectomies was unbelievable. After a period of "normal respite" aside from the surgical recovery..up to 6-8 months average, it came thundering back worse than ever. I started studying the SNS, and realized that we do have some control over it... no WE CANNOT STOP IT, or CURE... just treat ourselves to as much DE- stressing as we can. It is an excitatory system and everything can be a trigger. I looked to engage the PSNS So, in the times I was in remission stage I was focused on living well and taking care... Started meditation, Tai Chi and yoga. Of course gentle exercise helped too, and guided imagery. All it takes though is a simple bump or twist and we never know which will be a trigger. We each have our own. So sorry Nanc that you haven't had any relief. It is a grueling disease.

May we all have some peace today within our bodies.

Hana