Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-24-2014, 02:51 PM #1
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Default Ice is a NO NO

Appointment with a new Dr today at Kasier Permanente. One of the treatments he suggested was using the contrast therapy. WHOA-did he really just say that? I said there was NO WAY he was going to apply ICE to me at any time. I have read several threads about how bad ICE is for CRPS. Does anyone have a link to studies that show this is a BAD idea? I would really like to show the Dr. something concrete, that this treatment is not how CRPS should be treated-

Thanks for any help-

Judie
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Old 02-24-2014, 02:59 PM #2
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Before I was dx'd with
RSD/CRPS I was told over & over to ICE, ICE & probably caused more damage.
Hope this helps.....
http://www.rsdhope.org/ice-and-crps.html
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Old 02-24-2014, 08:20 PM #3
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Quote:
Originally Posted by judiesva View Post
Appointment with a new Dr today at Kasier Permanente. One of the treatments he suggested was using the contrast therapy. WHOA-did he really just say that? I said there was NO WAY he was going to apply ICE to me at any time. I have read several threads about how bad ICE is for CRPS. Does anyone have a link to studies that show this is a BAD idea? I would really like to show the Dr. something concrete, that this treatment is not how CRPS should be treated-

Thanks for any help-

Judie
Judie, i believe Dr Hooshmand covers that subject. If I find the link I'll post it but I'm sure someone here knows. And if your doc is recommending contrast or ice, you definitely need a doctor who knows how to spell RSD.
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Old 02-24-2014, 08:23 PM #4
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What is wrong with these ignorant doctors??? I can't understand how there are so many of us on this forum affected by CRPS and doctors don't know anything about it. Something seems incredibly wrong there.
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 02-24-2014, 08:24 PM #5
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http://www.rsdrx.com/rsdpuz4.0/puz_102.htm
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Old 02-24-2014, 09:30 PM #6
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These doctors just kill me with their ignorance. Looks like you have the links that I was going to send. Yeah, ice and contrast therapy are the worst thing you can do to RSD/CRPS.
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Old 02-26-2014, 10:50 AM #7
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Thank you for the links. Dealing with the limited options of medical coverage/treatment in a large HMO is very frustrating. It has taken a year of asking every Dr I come in contact with to try and find someone who has actually treated CRPS. What is wrong with this HMO??? I finally found a "pain management" Dr- and was so disappointed yesterday with his outdated treatment knowledge of CRPS. The second Dr I saw yesterday (I have filed a formal complaint against the surgeon who operated on my ankle and this Dr is investigated the complaint) told me directly that if I had received immediate treatment for CRPS that it might have "gone away." I stopped him immediately and said this does not "go away"-it might go into REMISSION, and that is a HUGE difference. Dr Hooshmand's article seems to be the one that is always referred to regarding not treating CRPS with ice. I am still hoping to find a study that might be connected to NIH or reference to medical journals. Those type of resources seems to be the only ones Kaiser Dr's will pay attention too. Thanks again for the responses! This forum is such a great resource

Judie
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Old 02-26-2014, 09:47 PM #8
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oh my goodness,,these doctors..
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Old 02-26-2014, 09:52 PM #9
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Yeah, sometimes I am truly frightned and feel so vulnerable when I witness such lousy patient care
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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