Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-01-2014, 02:00 AM #1
RSD_PITA RSD_PITA is offline
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Join Date: Sep 2013
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10 yr Member
RSD_PITA RSD_PITA is offline
Junior Member
 
Join Date: Sep 2013
Posts: 8
10 yr Member
Default Venting...I dont know what to do

Sorry if this is too long for some to read.

My wife has RSD. She was diagnosed about 1.5 years ago. It started in her hand and spread up her arm. Now she is feeling it in her leg. She had a trial epideral catheter. It worked well, but LNI would not pay for it.

She is on a lot of medication. She wants to catheter so she can get off meds. They make her very forgetful, and hard to concentrate. Now LNI is about to close the claim and wants her to go back to work.

Something clicked last weekend, and she changed. It went from hard to concentrate and remember, to not remembering 10 seconds ago. She thinks I've changed and I'm not talking to her. She thinks she did something to make me angry and not want to talk to her. But its that she just can't remember me talking to her.

She won't let me sleep. She keeps calling my name (like every 10 seconds) just to tell me she loves me, and asking me to talk to her, and I deal with it as long as I can but eventually I need sleep. I tell her I need to sleep so I can go to work. I go to my parents to sleep. She is convinced she wont wake me up, but she just doesn't remember. But she doesn't understand that we've tried it for a few days, and the only way I get sleep is if she passes out herself.

We saw a new pain doctor (out of town), and he seemed knowlegeable about CRPS, and even mentioned Ketamine. He said he would talk to her pain doc in town, and give him some ideas, and we can go from there. He thinks she might need in-patient help, cause she can't keep food down, and does not eat much, and probably needs to go down on meds. I know in-patient is not what she wants. If she gets help other than catheter she will not be happy with me. She is...very stuborn...but hey it is her life and her health.

Problem is I don't have a clue how I can help her. I need sleep so I can work, and try to pay bills for us. I want to get her the help she needs, but she will only take certain help.

I'm starting to snap at her, and be grouchy. I feel I need therapy now or something. I'm totally lost and don't know what to do!!!

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