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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Hi Katie. I'm sorry you have to be here but welcome. I have had CRPS for just over a year now. I have found a lot of useful information here and I have also found so many kind and supportive people.
We are all different and we have our own unique experiences with CRPS but at the same time we understand each other's experiences in a way that people with CRPS just can't. I find it really comforting to have this group of people who just get it without me having to explain. I hope you find the same help, support and comfort here. Kim Quote:
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"Thanks for this!" says: | eevo61 (03-10-2014) |
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Member
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We all hope you get better soon ,unfortunately we battle the same demon and we do understand each other,I had crps for 2 years now not easy also wc related that makes the battle harder but get ready for the fight of your life, we all deal with stuff in different ways, is true, and we all at the end suffer the same condition,good luck don't give up and ask as many questions you can don't ignore any changes in your body, your body talks and tells you what wrong, don't rush yourself to get better too soon,will take time sometimes but just be positive,like we all you will had good days and bad days, be patient ,strong and we are here for you,blessings to all ,
![]() ![]() Last edited by eevo61; 03-06-2014 at 01:47 AM. |
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#3 | ||
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Member
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Hi Katie - welcome! Sorry you are suffering. Read as much as you can and become an educated advocate for yourself. In my experince, most doctors, nurses and physical therapists know little or nothing about CRPS . You have to arm yourself with reliable current information. Be well - Lottie
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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#4 | ||
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Thanks everyone...I'm only 27 and I feel like I'm 100. Some days I don't want to even get out of bed and unfortunately the only thing that gets me up is to get to my pain meds. They by no means take it all away but sometimes they do make it to where I can stand to be awake. WC is a nightmare...I hate them, and I don't use hate very often but I do HATE them. They've made this all 10x harder and the WC doctor pretty much said my pain isn't real...that I'm faking. Why would I fake this??? How could anyone fake this pain??? I would LOVE to go back to work, I loved my job as a welder, it was my passion. I had no clue what RSD even was when I was diagnosed and trust me just like everyone else I'd rather work that have this crap. I take that back I hate 2 things...RSD and WC. |
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#5 | |||
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Member
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Yep! WC can be a nightmare for sure.
Do you have an RSD lawyer? If you got someone fighting for you WC is a little easier to deal with. I lucked out as far as the WC for the company I was working for. They did become A...holes at settlement time though. I wish you the best in your trials...
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Hope for better days..... Russ okska'sssini ómahkapi'si . |
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#6 | |||
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