Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-05-2014, 05:39 PM #1
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Hi Katie. I'm sorry you have to be here but welcome. I have had CRPS for just over a year now. I have found a lot of useful information here and I have also found so many kind and supportive people.

We are all different and we have our own unique experiences with CRPS but at the same time we understand each other's experiences in a way that people with CRPS just can't. I find it really comforting to have this group of people who just get it without me having to explain. I hope you find the same help, support and comfort here.

Kim


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Originally Posted by KatieHay View Post
Hi everyone I'm new to this site and just looking to talk to people that understand me. I've had RSD for about 6 months now and it's been the worst 6 months of my life. I ended up doing a outpatient mental health program because it was all just to much. I got hurt at work which is what caused the RSD and workers comp has been horrible. I'm getting ready to go to Cleveland Clinic at the end of this month for more help. My doctor is referring me there to do the program. I have RSD in my right hand, arm, both shoulders and lower back. Just looking for some new people to talk to. Hope everyone is staying warm.

Katie
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eevo61 (03-10-2014)
Old 03-05-2014, 11:03 PM #2
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Default Welcome Katie

We all hope you get better soon ,unfortunately we battle the same demon and we do understand each other,I had crps for 2 years now not easy also wc related that makes the battle harder but get ready for the fight of your life, we all deal with stuff in different ways, is true, and we all at the end suffer the same condition,good luck don't give up and ask as many questions you can don't ignore any changes in your body, your body talks and tells you what wrong, don't rush yourself to get better too soon,will take time sometimes but just be positive,like we all you will had good days and bad days, be patient ,strong and we are here for you,blessings to all ,
From Jesika

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Old 03-06-2014, 10:05 PM #3
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Hi Katie - welcome! Sorry you are suffering. Read as much as you can and become an educated advocate for yourself. In my experince, most doctors, nurses and physical therapists know little or nothing about CRPS . You have to arm yourself with reliable current information. Be well - Lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
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Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
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Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 03-09-2014, 08:55 AM #4
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Originally Posted by Lottie View Post
Hi Katie - welcome! Sorry you are suffering. Read as much as you can and become an educated advocate for yourself. In my experince, most doctors, nurses and physical therapists know little or nothing about CRPS . You have to arm yourself with reliable current information. Be well - Lottie

Thanks everyone...I'm only 27 and I feel like I'm 100. Some days I don't want to even get out of bed and unfortunately the only thing that gets me up is to get to my pain meds. They by no means take it all away but sometimes they do make it to where I can stand to be awake. WC is a nightmare...I hate them, and I don't use hate very often but I do HATE them. They've made this all 10x harder and the WC doctor pretty much said my pain isn't real...that I'm faking. Why would I fake this??? How could anyone fake this pain??? I would LOVE to go back to work, I loved my job as a welder, it was my passion. I had no clue what RSD even was when I was diagnosed and trust me just like everyone else I'd rather work that have this crap. I take that back I hate 2 things...RSD and WC.
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Old 03-09-2014, 05:48 PM #5
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Yep! WC can be a nightmare for sure.
Do you have an RSD lawyer?
If you got someone fighting for you WC is a little easier to deal with.
I lucked out as far as the WC for the company I was working for. They did become A...holes at settlement time though.
I wish you the best in your trials...
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Old 03-09-2014, 07:21 PM #6
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Default Sound so familiar

Quote:
Originally Posted by KatieHay View Post
Thanks everyone...I'm only 27 and I feel like I'm 100. Some days I don't want to even get out of bed and unfortunately the only thing that gets me up is to get to my pain meds. They by no means take it all away but sometimes they do make it to where I can stand to be awake. WC is a nightmare...I hate them, and I don't use hate very often but I do HATE them. They've made this all 10x harder and the WC doctor pretty much said my pain isn't real...that I'm faking. Why would I fake this??? How could anyone fake this pain??? I would LOVE to go back to work, I loved my job as a welder, it was my passion. I had no clue what RSD even was when I was diagnosed and trust me just like everyone else I'd rather work that have this crap. I take that back I hate 2 things...RSD and WC.
Hi Katie , my case is also wc and crps on my right foot,ankle and on my calf ,but is spreading to my back,left foot,right arm and dr are ignoring my complaints because after all my injury is on my right foot and ankle, can you believe that? I have a spinal cord stimulator implanted on jan 2013 and battery repositioned on jan 2014 because of the pain that causes flare ups generating from the battery on my left buttocks,who in their 5senses will get surgeries,spinal block injections just because you want to pretend your ill,obviously,nobody,but insurances and dr are just playing around with people like us doing the most expensive medical treatments so they can get the most money but mean while we paid the price suffering,is enough by being sick,is worst been with crps because has no cure and you don't know if tomorrow will be a good day,we do understand your position,if your dr don't listen well,get a new one,after all they are working for you,you need to look for what is good for you,you don't need an ignorant telling you that you have nothing wrong because your body knows that is something wrong,don't give up,keep asking questions and never let your dr leave that room without the response you need,keep trying,if he or she don't listen,get a new one,there are dr who do listen and understand that our pain is real,hope you get better,hope you have a better day every day,if tomorrow is not that good,we'll,let it pass,and the day after will be good,blessing to you and all our friend in neuro talk, from Jesika.
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