Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-08-2014, 12:55 AM #11
Kevscar
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Kim no wound is silly for any of us, 7 -8% of us get wounds that may never heal I got bitten by flying ants 22 july 2011
Didn't heal until this Jan
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Old 03-08-2014, 04:39 AM #12
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I'm sorry, Kev. I didn't mean to minimise what you are going through or what anyone else is going through. I guess I just wanted to acknowledge that I was lucky in that it didn't turn into something worse, as I know it could have and as I know small wounds have for so many others.

Although I am always in intense pain, I know that I am lucky compared to many of you. I think I just feel bad complaining about something that happens to me when I know you and others here are so much worse off. I don't want you guys to ever think that I don't know how much you're suffering or that I don't care.



Kim

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Originally Posted by Kevscar View Post
Kim no wound is silly for any of us, 7 -8% of us get wounds that may never heal I got bitten by flying ants 22 july 2011Didn't heal until this Jan

Last edited by anon6715; 03-08-2014 at 04:41 AM. Reason: Removed pic from quote (large and already just above my post)
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Old 03-08-2014, 08:54 AM #13
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Default We are not nuts just had bad days

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Thanks folks. Things have pretty much gotten back to 'normal' now. It wasn't really a big deal, it was just ridiculous. I didn't even bother telling anyone except my husband and my cripsy friends here. Who else would understand? I think if I told people that my pain ratcheted up because of a paper cut, they would just think I'm nuts.
We all have bad days in many different ways,people might think we are inventing stuff just avoid doing things or have a normal life but reality is as silly that might sound,who has a normal day with crps? Nobody,we are trying to be so careful to avoid more pain that for the rest of the world we are just a bunch of weird and paranoid dudes but who wouldn't be, no your ok,you just had a bad day but as usual it was lucky for you just that,a bad day,we are not crazy,pain is real,bad days too,good luck and blessings to all
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Old 03-08-2014, 10:32 AM #14
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My belief is that it can be anything to trigger CRPS... really. Almost anything. I have seen so many different kinds of injuries or upsets to the system cause this... I think our SNS sympathetic nervous systems are primed and ready for just that insult . And when I have flares, the triggers can be just as different too... I do know that I have crossover and extra sympatethetic ganglia, also, my blood vessels are tortuous ..

My belief is that I am just that perfect storm if you will. I'm trying to get to the bottom of it now because it is so maddening. I don't feel badly about all of the treatments and surgeries I had to "fix" it, and me...For that information may we long benefit. However, especially in the last 10 years with all of the advanced DNA testing and as I watch my body develop new problems and conditions, I wonder if there is genetic predisposition... and I'm wandering into those weeds..

May you all have respite from pain today...

Hana
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Old 03-08-2014, 01:13 PM #15
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Kim you didn't minimise anything. It's just that I know most aren't aware of what the slightest wound can do to some of us and I was worried you might be one
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Old 03-11-2014, 06:49 PM #16
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Default understand the paper cut!!

Hi guys! New to the site. So glad I'm not alone with this rsd/crps.
I have it (right now) only in left arm. Hit my elbow turning around to leave my daughters room. Thought I was going to die!! I have a high threshold for pain..i thought.lol!! For about 15 minutes I was contemplating going to the ER.
then it hit me that my crps was the reason I was in so much pain.!
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