Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-08-2014, 12:16 PM #11
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Welcome Dabney,
You found a great site here. A good place to find info, vent or just visit.
I love the feedback I get here and I know you will too...
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Hope for better days.....
Russ
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sdmack3 (03-08-2014)
Old 03-09-2014, 09:41 PM #12
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Originally Posted by birchlake View Post
Welcome Dabney! But sorry for the circumstances.

This forum is truly a great resource (and sometimes just a good place to vent). We all know what you are going through.

Knowledge is power so do your research and find competent professionals to help you. Be sure that the ones you choose have experience with CRPS (ask them point blank) as it is possibly one of the most misunderstood conditions of the human body.

It is best treated by a "multi-disciplinary" approach. I have CRPS in my foot so my primary CRPS doctor is my podiatrist. I also have my GP who handles certain issues like nausea, etc. Add a chiropractor and a pain management doctor to the team and that is how I am handling this condition.

There are lots of things that are similar here for many and you will also find that there are things that seem like they may be absolutely "unique" for you.

Taking some vitamin C daily is a practice that many of us abide by. There is some evidence that it can prevent spread of CRPS. I take 500 MG daily.

Good luck and keep us posted!
Thank you,
I am in the process of finding a neurologist , someone for pain management and they want me to talk to a psychologist as well. so right now kinda a waiting game, but day by day... right ? I started taking 1000mg of vitamin C for the past few days, also a supplement called Nutri Calm to try and help curb some stress. Will let you know if it helps.
-Dabney
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Old 03-09-2014, 10:11 PM #13
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Thank you Tessa,
That is a great idea to keep a journal of everything (pain, medications etc...) for when i go to different doctors. I have been doing as much Desensitization as i can handle right now, skin is just really sensitive to touch. I told my wife about the mirror technique... so, we are going start trying that as well.
Again, thank you for the helpful tips.
-Dabney
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Old 03-09-2014, 11:28 PM #14
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Quote:
Originally Posted by sdmack3 View Post
Thank you,
I am in the process of finding a neurologist , someone for pain management and they want me to talk to a psychologist as well. so right now kinda a waiting game, but day by day... right ? I started taking 1000mg of vitamin C for the past few days, also a supplement called Nutri Calm to try and help curb some stress. Will let you know if it helps.
-Dabney
Hey Dabney!

Let me know if you find a good neuro and pain management dr. I am also looking for new ones...I live in the Richmond Region as well. As far as a psychologist goes, I recommend finding one who works a lot with pain patients. Sheltering Arms (St Mary's location) has some good ones.

Hope the supplements help you!
Nanc
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Old 03-20-2014, 01:39 PM #15
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Quote:
Originally Posted by sdmack3 View Post
Thank you Tessa,
That is a great idea to keep a journal of everything (pain, medications etc...) for when i go to different doctors. I have been doing as much Desensitization as i can handle right now, skin is just really sensitive to touch. I told my wife about the mirror technique... so, we are going start trying that as well.
Again, thank you for the helpful tips.
-Dabney
Just checking in on you Dabney. Hope all is well, and you're able to spend some time out in this gorgeous weather today!
VNV
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