Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-17-2014, 05:22 PM #1
Jerie Jerie is offline
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Jerie Jerie is offline
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I recently have had another RSD issue with my head and this time it's the sound of an electrical power plant between my ears. I plugged my ears and discovered it wasn't from anything outside it is in my brain. I figured it was a form of tinnitus. I read up on it and medication can cause it and so can RSD. I just added that to my list of head issues. Nerves in one side of my face burn on my ear, eye, cheek and nose and upper lip. The other side I have pain in the back of my head over the top to deep behind my eye and the temple in y head that feels vascular. Then there is the whole neck and head radiating heat issue, sweating. I developed weird lights in the corner of my eye like worms and then I had firefly display that was interesting. I of course have a lot of emotional roller coaster issues mostly due to the trauma doctors and insurance companies put me through. Then there is the icing after sweating, the dark red nose and cold face stuff I get. Regular nightmare. SSD thinks I can work like that. What a nightmare this stuff is. I tried homeopathic ear drops for tinnitus but it didn't help. It's worse when there is no background noise. Try a fan to sleep. It of course has to be pointed away from me. I also have trouble with noise sometimes, it hurts and irritates me. I hate it when that symptom crops up, I can't stand 2 people talking or the TV noise and can't be in crowds. The only reprieve? RSD moves around and different symptoms bother me throughout the day, sometimes anyways. Good luck with that, maybe it will clear up on its own. I don't think there is an effective treatment for it except distracting noise. Wear ear plugs in noise and don't let your hearing get damaged further.
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eevo61 (03-18-2014), RSD ME (03-17-2014)
Old 03-17-2014, 07:14 PM #2
RSD ME RSD ME is offline
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RSD ME RSD ME is offline
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Thanks for sharing your experience with Tenitis with me Jerie. I had a feeling RSD could cause this and just looked it up to confirm. I wasn't surprised. RSD sucks. I hate it. I also have had lightning bug like lights flashing in my right eye. It was only one time a few years ago. It lasted for about a minute and never happened again. I saw my eye dr about it and she said my retina was not torn so not to worry about it, but thought it could also be rsd related. I don't think they can do much about it, but I found it interesting that you had this happen to you too. You are the first one I spoke to who has also had this experience. I think it's rsd related too. It seems to attack everything. It's very scary but like you said rsd moves around so different symptoms bother me throughout the day. Except for the constant pain in my rsd wrist and hands, feet and stomach. Geez that's almost my whole body. Its just so sad. Well thanks for your input Jerie. I really appreciate it. Knowledge is power. I hope you have a good night.
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