Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-17-2014, 06:07 PM #1
Jerie Jerie is offline
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Join Date: Sep 2011
Posts: 71
10 yr Member
Jerie Jerie is offline
Junior Member
 
Join Date: Sep 2011
Posts: 71
10 yr Member
Default Pelvic and muscle nightmare

I am at my wits end with sympathetic blocks. I have been having severe pelvic, bladder pain. I have had bouts the last 3 years but this is taking the cake. Every muscle in my body hurts. I am sore to the touch. When I stood up the other day I didn't think my legs were going to hold. My glut muscles and the muscles on the inside of my groin are sore. The tendons in my lower arms and the muscles in the back of my thighs, my neck, everything hurts. I have been taking a lot of opiates which I don't normally do because I use oral ketamine. I also have been taking baclofen, but I swear it made it worse. I had my bladder scoped and they can find nothing. The veins in my groin hurt too, if it's possible to feel vein pain, but I swear I do. Sometimes my whole pelvis aches and I get referred pain down my legs too. I am about ready to ask for a pain pump. I am tired of trying nerve blocks for full body RSD. It's impossible to get relief from all my symptoms. I can't take ketamine for burning and opiates. Opiates can make me burn if I take them too long too. That's why I don't use them often. There are just times burning isn't the #1 pain issue going on. I have the body bouts and bone things at times too. I think this scares me worse than the burning. I get afraid RSD is going to get me and end up in a wheel chair or dystonia so bad I won't be able to function at all. My long muscles are affected right now. My bladder issues are very painful, painful urinating too. No infection either. Hurts to wipe too. (that's burning nerve pain.) Bladder just dribbles sometimes too. Think I have to go and nothing much comes. My first thought was my thyroid meds. That is the only thing new. Another RSD gift to add to my list. I didn't see anything on line that would lead me to believe that is it though. Anyone have any ideas? I take trace minerals, vit D and liquid aminos in moderation. I think my electrolytes are good and my last labs looked great for a change other than my thyroid that is.
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