Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 03-19-2014, 03:05 PM #1
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Default RSD doesnt own me!!

Hi all!

I dont get to visit very much anymore.....just soooo busy! Actually I spend about 75% of my time on my bed due to the dastardly RSD! But even though it keeps me down more then I would like, I fight the RSD and get out and go after my passions in life.

Luckily my partner, and host of our show, keeps an eye on me. He is always making me go sit down, and wont let me do to much. It is really cool to find friends that have the same passions, and also understands the limitations of RSD. Plus my doctor comes out and checks on me when we do these bigger productions.......just having him show up and ask if Im ok, or need anything is a great comfort. Lots of times they have no idea how bad I am hurting.....and I wont tell because I dont want to be sent home

We started doing a once a week streaming show on the paranormal about 4 years ago for fun. It is really fun, and it isnt to taxing on my beat up old body LOL! Then a few months ago we were contacted by Art Bell!! I am still reeling from that lol, but he asked us to join his Dark Matter Radio Network!!!!! So now besides us streaming on the world wide web, we are being broadcast live by Art Bell!

You can go to
http://artbell.com/
http://www.paranormalcentral.net/
to watch or listen to the weekly show.

But I digress. I wanted to share some pics of a Television Pilot that we taped. Thought it would encourage those that have RSD to fight the darn stuff, and try to have a life outside of the pain. It is rough, and sometimes I want to give up, but I keep thinking.....No, this stuff doesnt own me!!!

So before this becomes a book
Here is the link to the album
http://neurotalk.psychcentral.com/album.php?albumid=661

I hope you enjoy the pics, and also the show if you happen to like paranormal stuff and tune in. But mostly....I hope it inspires you to fight the RSD. Even if you cant do much, it is better then letting it have it's way with you

The pilot is in post production now, and might be a year before it is finally released to be shown to the world.....cant hardly wait, and will keep you all updated. I really wouldnt be where I am today without all the encouragement and support I received from my RSD family right here in this forum

I do get in here a couple of times a month and read up. It would be cool to hear stories on what others do to try and live a normal life.....keep up the fight....RSD doesnt own us!!
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Old 03-19-2014, 07:12 PM #2
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Thanks for great links Allen. I hope you're doing okay and my thoughts are always with you. Take good care of you!
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Old 03-20-2014, 10:17 AM #3
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Thanks Allen!! Very uplifting & inspirational! I can't wait to make
time to watch! I LOVE the paranormal stuff! Wish I had some "gifts"
in that area.
Thanks for updating & posting & motivating us to fight!
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Old 04-05-2014, 12:27 PM #4
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I forgot to add a little neat bit of info!!

If any of you get the Destination America channel (Dest). be on the lookout for the show Monsters and Mysteries in America. I am featured in one of the shows! Here is the link to the information on the show so you can look for it.

http://www.destinationamerica.com/tv...-encounter.htm

I am in this one a lot!!! Enjoy
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Old 05-01-2014, 02:24 AM #5
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Well We had a meeting with the local Fox and CW people to talk about where to go from here. The Guy that was the manager over both stations decided we will be going to Los Angeles in a couple of weeks for some more meetings to talk about doing some national shows!!

I am excited and scared at the same time. I cant believe these things are happening to a disabled guy that started out doing a hobby, and I am scared that I wont be able to keep up, and will let everyone down. At least I told everyone how Im feeling, and they are supportive.

They told me to just do what I can, and it wont be that hard. If we get an order for a few shows, we can do them all in a couple days a month. They said it will actually be easier for me because there will be a crew doing the whole set up and take down......something we have to do with no budget lol.

So we shall see how this goes, and hopefully one day you will be able to tune in and catch all the latest and best paranormal stories out there today!
Attached Thumbnails
RSD doesnt own me!!-1402883_702751793080959_5895761265222679451_o-jpg   RSD doesnt own me!!-pt-jpg  
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Old 05-02-2014, 09:08 PM #6
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Allen, I admire your courage to pursue that which brings you joy aand not let the RSD / CRPS monster steal your quality of life. Rock on! -lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 05-02-2014, 11:41 PM #7
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Allen just keep going,you made me get up today from bed ,as on it from many days,after our chats I decided if you can why I can't ,thanks for your help,you made my family so happy ,thanks Allen ,your friendship means a lot and we are already follow what your doing on TV,let me know when you finally catch bid foot,I'm a big fan also my husband and daughter ,they also say hi and are sending you blessing,from your friend Jesika
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Old 05-06-2014, 06:58 AM #8
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Well..............guess what! We had just finished our show at 7pm sunday, and we get an email from..........the VP of NBC Universal! Said lets meet up, but we need an agent in order for him to order some shows!

So we call our local station mgr, and he had no idea the guy was going to call. Found out he watched the show, and liked what he saw. Then the local station mgr calls and tells us he called his friend at CBS, and he wants to meet just because the other guy does, but we need to get our pilot finished.

So we call the guy editing the pilot, tell him we need it asap! A few minutes later he calls us back and tells us.......he has two shows on ABC and he thought he better call his boss at ABC! So now we have meetings arranged with the top television execs at all 3 networks!

I am beyond shock, and wouldnt ya know it.....the stress factor hits me and I go into a flare.....ah gee! Heck the RSD doesnt own me! Let it flare! Im gonna ride this one!

Thought I would come over and give an update, and ask for prayers for the darn RSD. I know I can handle the meetings, just dont know what the RSD is gonna do, and dont want it stopping me. So all the prayers I can get will greatly be appreciated!
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Old 05-06-2014, 07:47 AM #9
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Quote:
Originally Posted by allentgamer View Post
Well..............guess what!

I am beyond shock, and wouldnt ya know it.....the stress factor hits me and I go into a flare.....ah gee! Heck the RSD doesnt own me! Let it flare! Im gonna ride this one!

Thought I would come over and give an update, and ask for prayers for the darn RSD. I know I can handle the meetings, just dont know what the RSD is gonna do, and dont want it stopping me. So all the prayers I can get will greatly be appreciated!
Thanks for the update! Yippee Yahoo I'm doing the happy dance for you!! I will absolutely so a prayer for you. You must be so excited I'm already celebrating....

I'll second "RSD doesn't own me!"
You got this!
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Old 05-08-2014, 04:17 AM #10
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Awww Jesika! I am soooo proud of you!!!

Dont do to much at one time.....you cant eat an elephant in one bite

Tell your family Hi for me and big hugs all around! I will keep you guys updated. You know For a while there I would come by here and read some posts, and kept saying to myself.....this is my RSD family. I have to come back and post, be there for everyone, and I mean everyone....new and old members alike.

We really do need each other. We are the only ones that can really know what the others are really saying and feeling.

When your up late and cant sleep, and want to be a little scared....check out my youtube channel. I have been archiving our shows there

https://www.youtube.com/channel/UCWu...pjqiqyA/videos

It is kid friendly too
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