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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Senior Member
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Hi all!
I dont get to visit very much anymore.....just soooo busy! Actually I spend about 75% of my time on my bed due to the dastardly RSD! But even though it keeps me down more then I would like, I fight the RSD and get out and go after my passions in life. Luckily my partner, and host of our show, keeps an eye on me. He is always making me go sit down, and wont let me do to much. It is really cool to find friends that have the same passions, and also understands the limitations of RSD. Plus my doctor comes out and checks on me when we do these bigger productions.......just having him show up and ask if Im ok, or need anything is a great comfort. Lots of times they have no idea how bad I am hurting.....and I wont tell because I dont want to be sent home ![]() We started doing a once a week streaming show on the paranormal about 4 years ago for fun. It is really fun, and it isnt to taxing on my beat up old body LOL! Then a few months ago we were contacted by Art Bell!! I am still reeling from that lol, but he asked us to join his Dark Matter Radio Network!!!!! So now besides us streaming on the world wide web, we are being broadcast live by Art Bell! You can go to http://artbell.com/ http://www.paranormalcentral.net/ to watch or listen to the weekly show. But I digress. I wanted to share some pics of a Television Pilot that we taped. Thought it would encourage those that have RSD to fight the darn stuff, and try to have a life outside of the pain. It is rough, and sometimes I want to give up, but I keep thinking.....No, this stuff doesnt own me!!! So before this becomes a book ![]() Here is the link to the album http://neurotalk.psychcentral.com/album.php?albumid=661 I hope you enjoy the pics, and also the show if you happen to like paranormal stuff and tune in. But mostly....I hope it inspires you to fight the RSD. Even if you cant do much, it is better then letting it have it's way with you ![]() The pilot is in post production now, and might be a year before it is finally released to be shown to the world.....cant hardly wait, and will keep you all updated. I really wouldnt be where I am today without all the encouragement and support I received from my RSD family right here in this forum ![]() I do get in here a couple of times a month and read up. It would be cool to hear stories on what others do to try and live a normal life.....keep up the fight....RSD doesnt own us!! ![]() |
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"Thanks for this!" says: | AZ-Di (05-01-2014), Brambledog (05-01-2014), eevo61 (05-02-2014), RSD ME (03-19-2014), Vrae (03-19-2014) |
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#2 | ||
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Senior Member
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Thanks for great links Allen. I hope you're doing okay and my thoughts are always with you. Take good care of you!
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RSD ME . |
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"Thanks for this!" says: | allentgamer (03-20-2014), eevo61 (05-06-2014) |
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#3 | |||
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Member
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Thanks Allen!! Very uplifting & inspirational! I can't wait to make
time to watch! I LOVE the paranormal stuff! Wish I had some "gifts" in that area. Thanks for updating & posting & motivating us to fight!
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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"Thanks for this!" says: |
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#4 | |||
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Senior Member
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I forgot to add a little neat bit of info!!
If any of you get the Destination America channel (Dest). be on the lookout for the show Monsters and Mysteries in America. I am featured in one of the shows! Here is the link to the information on the show so you can look for it. http://www.destinationamerica.com/tv...-encounter.htm I am in this one a lot!!! Enjoy ![]() |
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"Thanks for this!" says: | eevo61 (05-02-2014) |
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#5 | |||
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Senior Member
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Well We had a meeting with the local Fox and CW people to talk about where to go from here. The Guy that was the manager over both stations decided we will be going to Los Angeles in a couple of weeks for some more meetings to talk about doing some national shows!!
I am excited and scared at the same time. I cant believe these things are happening to a disabled guy that started out doing a hobby, and I am scared that I wont be able to keep up, and will let everyone down. At least I told everyone how Im feeling, and they are supportive. They told me to just do what I can, and it wont be that hard. If we get an order for a few shows, we can do them all in a couple days a month. They said it will actually be easier for me because there will be a crew doing the whole set up and take down......something we have to do with no budget lol. So we shall see how this goes, and hopefully one day you will be able to tune in and catch all the latest and best paranormal stories out there today!
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. Gone Squatchin |
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"Thanks for this!" says: |
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#6 | ||
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Member
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Allen, I admire your courage to pursue that which brings you joy aand not let the RSD / CRPS monster steal your quality of life. Rock on! -lottie
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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"Thanks for this!" says: | allentgamer (05-06-2014), eevo61 (05-04-2014) |
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