Originally Posted by Bri594

Thank you!! I have an appt Friday with a neurologist. I don't think my dr knows what is wrong & doesn't want to accept responsibility that something could have gone wrong. He was a real jerk last week & acted like I was crazy for having these problems.

Originally Posted by Nanc

Hi Bri, welcome to NT. Sorry you have to deal with RSD/CRPS.

I have had RSD for a little more than 23 years. It started in my face and around 7 years ago it started to spread with new injuries. I now have it through most of my body. With so many failed treatments, I finally got two SCS's (cervical and thoracic) implanted in 2011. I had a revision to the thoracic SCS 5 months after implant, leads changed out for paddle leads and moved the battery. They were awesome. They allowed me to get through another 1 1/2 years of work. After that 1 1/2 years, the effectiveness began to wear off. The thoracic paddle migrated and that relocated battery was twisted and hurting. My neurosurgeon thought it best to remove them then do another revision, so I had both SCS's removed this past January.

Have you had yours reprogramed? A month is pretty soon to say it will not help. Plus you are still recuperating from the surgery. It took me MANY long programming sessions to get the right coverage and stimulation.

There are quite a few on NT that have had success with these helping thier RSD pain. I hope yours starts helping your pain soon!
Nanc

Originally Posted by krow46

Hi Nanc, I am fairly new here also and am up for both neuros and you have. You didn't mention anything going wrong with the cervical one. Is everything ok with that neurotransmitter? It seems as the both of you have had problems with the thoracic one and I have read or others having the same problems also so I am leaning towards the infusion pump instead because they said I am a likely candidate for that also. Any comment
Hugs to all and I hope your days have tolerable pain.

Originally Posted by Bri594

Thanks so much for the advice & support everyone!!

Originally Posted by Bri594

Well, the dr thinks my crps has spread to my back & that is the cause for all my pain. He doesn't believe there is an infection just that I had something viral going on. As to the headaches he has no clue why I have had one for a month now. He gave me Percocet & lidocaine patches to try & wants to see me in 2 weeks. I have not been able to go back to work bc of the pain & headaches but need to return soon. I don't how I'm suppose to, I have trouble just walking around. Driving is almost impossible bc it puts to much pressure on my back & my leg doesn't always work like it should. Ugh, Im so exhausted & depressed with all this!!