Hi.. My name is Bri & I am new to this site & happy to have found it. I was diagnosed with crps/rsd in my left foot over a year ago, it has since spread to my right foot. It took many doctors to finally figure out what was going on. I have had injections, tried many different meds & a month ago I had an SCS put in(I also posted in the SCS forum). I was wondering if any one else has tried an SCS for rsd? My dr thought I was a good candidate for it & I had great success with the trial but not so much with the permanent. I am beginning to regret my decision & wonder if I have created more problems for myself

Sorry to hear that Bri.
I'm told that I'm a good candidate too but I'm not letting anybody mess with my spine if it can be avoided.
Besides full body spread of CRPS I have degenerative cerebral atrophpy which already plays havoc with my spine...

Hi Bri, welcome to NT. Sorry you have to deal with RSD/CRPS.

I have had RSD for a little more than 23 years. It started in my face and around 7 years ago it started to spread with new injuries. I now have it through most of my body. With so many failed treatments, I finally got two SCS's (cervical and thoracic) implanted in 2011. I had a revision to the thoracic SCS 5 months after implant, leads changed out for paddle leads and moved the battery. They were awesome. They allowed me to get through another 1 1/2 years of work. After that 1 1/2 years, the effectiveness began to wear off. The thoracic paddle migrated and that relocated battery was twisted and hurting. My neurosurgeon thought it best to remove them then do another revision, so I had both SCS's removed this past January.

Have you had yours reprogramed? A month is pretty soon to say it will not help. Plus you are still recuperating from the surgery. It took me MANY long programming sessions to get the right coverage and stimulation.

There are quite a few on NT that have had success with these helping thier RSD pain. I hope yours starts helping your pain soon!
Nanc

Welcome Bri, I'm sorry you have rsd, but this is a great forum to be on.Everone here is awesome. My pm dr wanted me to try SCS but my neuroloigst and gp advised against it for fear of complications and infection whcih could aggravate my rsd. I was also afraid to let anyone touch my spine because I have scoliosis. Some people here have had it done though with great success. It's a personal decision. I got several opinions from all my drs and then made my decision. I hope whatever you decide to do with your SCS, that you feel better soon. My prayers are with you.

Thanks everyone.. It's been 6 weeks now since I had the SCS implanted & still dealing with problem after problem. I have fluid around the battery & they are checking for infection but have not found anything yet.

Sorry... That posted before I was through writing. The dr suspects that I could have had viral meningitis but is not sure. I had a lumbar puncture last week. He doesn't think any of my problems have to do with the implant. Back to more doctors this week.

Hi Nanc, I am fairly new here also and am up for both neuros and you have. You didn't mention anything going wrong with the cervical one. Is everything ok with that neurotransmitter? It seems as the both of you have had problems with the thoracic one and I have read or others having the same problems also so I am leaning towards the infusion pump instead because they said I am a likely candidate for that also. Any comment
Hugs to all and I hope your days have tolerable pain.

Hey krow! I just saw this post. I posted a comment on your other thread. I will send you a private message so I don't hijack Bri's thread.