i feel you cannot 'work through' the pain of rsd. it is a pain you often have to give in to, and pamper, and medicate and wait it out. i have a super pain tolerance and yet i know when i hit what i call the rsd wall ... that is when i stop and put the legs up take meds and nap if possible. you cannot fight this pain you can only work around it. joan

you can call me flower... if you want to

Hi there - being a lawyer specializing in health issues, I have to say - if you need money for anything, you have it right now. That rehab clinic just committed massive malpractice and violated its state licence to practice by having faulty equipment... and for patients in chronic pain?! Of course they didn't file an incident report - it will be shut down immediately, fined by the state, and will owe you a pile of money! but don't you owe it to the other patients who will be injured by the careless maintenance of the equipment there to file a report?
You do not need to call that clinic back (obviously do not GO back - use your common sense!), but you should call the state's licensing board for health clinics or medical professionals. Usually it is part of the Department of Education, or Department of Health. If you tell me what state you are in, I will find it for you. You can file a complaint online.

P.S. trust your instincts and keep yourself in gentle caring hands. You are the best expert on your own pain... if a doctor gives you what sounds like dumb advice - it probably is!

LOL LOL "Bambi" hu?? LOL I still love it when the skunk say's that.. "You can call me flower if you want to" he's so cute!! thanks for the laughs, flower. LOL Love, Desi

hehehe..couldn't resist

Attachment 1355

thank you all for your advice and concern. i went to therapy this morning at the "broken" clinic. i noticed there was tape around the machine and obviously nobody was using it. my OT asked me about my dr. appointment and i told her that i was blown off at which point she asked if SHE could call the doctor. of course, i could not do anything today but let her manipulate my arm a little and then e-stim. to tell you the truth, she is my best advocate because she is the only one that knows how hard i have been working and documents my pain every time i am in there. she is gentle and sorry and i feel bad because it wasn't HER fault that the machine is a piece of ****. she documented everything. she measured the bruises and measured my range of motion.

i go in tomorrow for another block (3rd this week) and the nurse there told me today to make sure i wrote down everything that happened so i could talk it over with the dr.

i guess i have to come to the realization now that this has ruined my chances to start school in the fall. i am going to lose it when i call and give up my spot.

thanks again everyone.

ang

i hope your 3d block goes well. i'm glad your OT is gentle and your advocate, too. I'll hold onto your dream of starting school in the fall, for you, while you try to get through the next few days, and weeks, don't give up yet
xoxoxo

Awww, Ang... I'm so sorry this had to happen to you. It truly sucks.

I'd take a few days to think things over before calling and giving up your spot at school. Not necessarily because "things might change", but because you can't give up on hope.

Hope is the only real thing rsd'ers have, imho. It's hope for a cure, hope for better meds, hope for one day of less pain, just plain ole hope, period.

I am in a pretty bad situation here, too. The rsd pain is standing between me and the aids meds I need to be taking. I truly will die if I don' take them... but what's the point of being alive when there's no "quality of life"??

But I keep plugging along, simply because of hope. Hope of watching grandbabies grow... hoping to be here to help Michael through his own problems from aids & HepC... hope that I will find a way to cope with all this and still maintain a decent life.

Keep the faith, girl... and keep on hoping.

thank you guys so much. i woke up this morning in a little better mood and things don't seem so grim to me. i won't give up!!!!!!!!!!!!! as of today i am going to keep my mind open - not give up my spot in the massage program and press on. i get my 3rd block this week in about 2 hours so pray that it goes smoothly.

shalom, my friends.
ang