I'm real sorry about this Renee!! By the way.. I didn't see your comment above about not being brave - You certainly are brave!! Just because you and I choose different things doesn't make either of us braver than the other.

Never give up.. something might be right around the corner for you.
Tessa

Renee, I'm sorry that this institute didn't work out for you. It's always horrible to have hopes dashed, but when those hopes are to find some help for something as crazily cruel as CRPS the let-down is enormous. Try not to let it get you down for too long, there's research going on and good people looking at this. Not as many as we might want, but there is progress being made. Slowly.

If nothing else, you have publicly highlighted something that might otherwise have caught more folk out. It's important that crocks like that place are talked about and exposed. You just might have saved someone on this forum from spending a lot of money out for nothing, and even more disappointment than you feel. That's a good thing

I'm hopefully on an IVig trial, not starting for a few months yet though. It's definitely worth trying for I think, although you do have to be careful where you sign up. The world clinical research trial website is very informative, and you can be sure that wherever you go is a valid and professional unit.

Take care of yourself, and as others have said - don't give up. There's always got to be hope

Bram.

Sorry it didn't work out! It sucks thinking you might find something or some place to help, only to have the dream stomped on

This world unfortunate is full of people try to get the most they can out of the insurances,recommending unnecessary treatments or the most expensive one,at least you took precautions and did not run into it without making sure everything was legit,sorry did not work,but soon there will be something that make your condition improve,I really hope that,here in Los Angeles area there is a dr called dr Joshua prager he works in ucla medical center also part of the board selected by the state of California to regulate how crps/rsd patients medical treatment should be supervise ,approaches and how wc, and ssi should validate the fact,this patients are or will be permanent disable without a radical and aggresive treatments,so far in my case wc,they ucla medical don't take those cases unless everything is prior authorized by the insurance only like that,my insurance wc for this case doesn't belong to the network,I watched so many of his videos and debates with other doctors from other states in you tube and wishes he could see me,but no luck ,I recently was treated from a dr who was covering my pm md and he seen more updated with the treatments,but because I'm still waiting for a final report for an iMe I won't be able to switch des yet,his name Dr Carl Hess in Fullerton ,ca.also sound so advance and knowledge about the condition,I which with no doubt to change pm dr,but I have to wait,he is part of my ins network,he approaches treatment and different way and understand if you first injury is in my case right foot and ankle but crps develop because of that,scs generator gave me so much pain in my non crps leg he refers the condition as industrial,because of this you got that,is the first time in almost three years a dr instead of me pointing that fact he mentioned without me getting angry and keep telling I'm not ok because of the pain on my left side where the old battery packet was,felt relief when he mentioned and also created a plan for the upcoming treatment,unfortunately gallbladder issues came along the way,he told me to wait a little longer because gallbladder will create flare ups and I need to avoid that so soon will se him as long as my original md don't comeback sorry to said this,but I hope he retire and I can switch md without waiting for the iMe dr report,keep the faith,soon you will find the right dr,treatment and will not experience any more disappointment,non of us deserve that,we already have enough and God will lead us to the right place soon,we all hope that my friend,god bless you all and talk to you soon,your dearest friend eev or Jesika don't allow any negative though erase those smiles we are here fitting and as long as we keep fitting,no one will erase that joy of non giving up so smile,we have a new day to live on with pain,but still alive