What a lovely idea, moonstar.
Dana, have one of mine too...
all the best!

Artist for posting the Spoon Theory, I just wanted others to know they can order a spoon pin or note cards from the website ButYouDon'tLook Sick. I have a spoon pin that helps to remind me that I can no longer do everything and it is OK, well it isn't OK, but it is something I have to accept. Dana you may also have one of mine!! Please hang in there, we all really care!! Carose

Carose
Thank you soooo much for sharing that website There's so much neat stuff there and I'm really looking forward to discovering it all.
Jeanne

All
And please if you are short a few spoons.. take mine friends.

Dana,
Iam so sorry for your pain. Please try to hang in there. I've felt like you do many times. Since finding this site, I feel so much better. When Iam feeling real bad I come here and sometimes just read. I don't feel alone anymore. I know things can get really bad. But from what I've experienced here, you are not alone in this nightmare. Everyone is so wonderful and understanding. This to me is my new home. I hope things get better. My prayers are with you.


Sue K.

Hi Dana,

I wanted to jump in here to tell you to do whatever it is that helps you. People have good intentions but they have no idea, and some dont really care cause they only think of numero uno.

Im sooo sorry that you are going through this. None of us should have to endure the hardships this darn RSD has put on us. You will find, or have already found that some friends will come around less and less, and a few will be true friends. One thing about RSD is it really shows your true friends and relationships with relatives.

As I read your posts it really reminded me of my plight with this monster. The last couple of days has found me also thinking about the way it was, and how I am really tired. Tired of people seeing me, and thinking there is nothing wrong, or just plain being selfish enough to cause me more pain through their actions.

But then I got a call from Vic and it turned my whole week around. It is amazing how much it helps to talk to people that understand. Even the closest around you try, but can never really understand. Talking and laughing with Vic really made me feel better, and then I log in here and the first post I read is Roz's beautiful day. That did it! I felt much better.

That is when it hit me. We have to keep our thoughts trained on trying to see the good instead of the life we now lead. If you want to call it a life LOL.

Your not alone, and Im glad you came and let it out here. This place has really helped me tremendously. You can come in here screaming and kicking and we wont care. We will just love ya back

I truely hope the SCS works for ya, and will be cheerin it on, and keeping you in my prayers.

Allen, it's me Deb and I have been missing in action for sooooooooooooo long. It is hard for me to remember everyone because they are so new. I hope things have turned around for you and from what I have read I think you got your social security? Anyway, just wanted to tell you I still think of you and all the times we had on line. Drop me a line k?

The spoon theory is one of my faviorite stories. it is so telling. i copied and pasted it and changed the lupus to rsd and sent it to all my friends and family again. they need to be reminded of our plight.
thanks for sharing it. joan

Hi Joan! hey, Lady.. thank you for the idea of copy and paste "The spoon Theory" and sending it to friends and family! I like that idea! thanks for sharing that. Artist, thank you for posting that also ("The spoon Theory") Love, Desi

i already got a note back on the spoon theory from my sister ... she said it was quite an analogy and she would have to rethink all this. so, yes, by all means, send it to many! joan