Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 05-08-2014, 11:30 AM #31
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Nanc View Post
Bottom line is, IMO, if you are improving and dr is willing to keep going beyond 6, then go for it. But, you have to be comfortable with it.
Hi Nanc! As always, thank you so much for the advice! It means so much! I wish it wasn't 1½ hours roundtrip and a driver needed for sedation..ugh! And this pain in my neck. I can see where this will get old too. I don't know. I do know that my arm feels so much better today than it did pre-injection Tuesday. I just don't know that it's realistic to keep running every week (after #6), trying to arrange a ride and all. Perhaps at some point this will all be clear to me (what to do).

Best of luck today Nanc! Please keep us posted hon!!

Vrae
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (05-08-2014), eevo61 (05-30-2014), Nanc (05-08-2014)

advertisement
Old 05-08-2014, 05:15 PM #32
fbodgrl's Avatar
fbodgrl fbodgrl is offline
Member
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
fbodgrl fbodgrl is offline
Member
fbodgrl's Avatar
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
Default

Glad you are responding and getting some relief!
__________________
Zookeeper
~Shelly~
fbodgrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (05-30-2014), Vrae (05-08-2014)
Old 05-08-2014, 06:51 PM #33
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

I'm glad your are getting some improvement and you pain is getting more manageable,that's the goal ,always remember take time to rest is very important and do what you think is best for you , rest and plenty sleep,are,also,important part of recovery I don't know how many times I had told you that my bad,just wish you the best you already know that,blessings and hang in there ,your friend Jesika
Ps.tibetan singing bowls is very relaxing just what you need!!!!
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (05-08-2014)
Old 05-29-2014, 05:51 PM #34
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Hi everyone!

I thought I would button up this thread.
So I did 5 of the 6 Bilateral Lumbar Sympathetic Blocks and Stellate Ganglion Blocks. They would do them at the same time. I did them back to back for 5 weeks. It became clear to me that the block was only lasting about 5 days max. I think it helped my legs more than my arms. And never did I get more relief than the very first one (LSB) I received.

With regard to the SGB, I’m not sure those were doing a darn thing for me, but I went with it anyway. My neck is still somewhat recovering (weird spasms). Nothing too crazy and slowly going back to “normal”, which is only a setting on my washing machine!

I did a follow up with the PM doc and he agreed with my cancelling the final block. We then discussed a few more options. I ask him about doing a nerve root block. WAAAAY back in 2004 after my surgery, the surgeon told me he overstretched my nerve root S1. I would like to block the S1 and just see if it will help. At least before we move on to implantables (e.g. SCS).

I go see my Neuro doc on Monday.. or at least I have an appt. I am coming down with a chest cold so we will see how I feel come Monday.

Anyway.. so that’s it. I gave it go, thought it was working, but turns out.. not so much. Damn.
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (05-30-2014)
Old 05-30-2014, 08:05 AM #35
fbodgrl's Avatar
fbodgrl fbodgrl is offline
Member
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
fbodgrl fbodgrl is offline
Member
fbodgrl's Avatar
 
Join Date: Dec 2012
Location: Eastpointe, MI
Posts: 259
10 yr Member
Default

Sorry the results weren't that great.

But you braved it and gave it a try at least. Proud of ya
__________________
Zookeeper
~Shelly~
fbodgrl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (05-30-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
bilateral tos tinesh01 Thoracic Outlet Syndrome 12 10-15-2013 10:20 AM
Bilateral PN Following Hip Replacement Zman Peripheral Neuropathy 10 05-04-2012 04:14 PM
Nothing Bilateral here RX Horatio Peripheral Neuropathy 0 01-08-2012 10:16 AM
When you guys say bilateral... brainedout Trigeminal Neuralgia 8 01-10-2011 08:57 AM
TN bilateral Lynda Trigeminal Neuralgia 6 09-27-2006 12:31 PM


All times are GMT -5. The time now is 12:00 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.