Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

View Poll Results: SCS?
Did you have a SCS put in? 11 73.33%
Did you have a SCS put in?
11 73.33%
If you were given relief from the SCS how long? 8 53.33%
If you were given relief from the SCS how long?
8 53.33%
Did you still have to take pain meds? 10 66.67%
Did you still have to take pain meds?
10 66.67%
Any complications after having one put in? 8 53.33%
Any complications after having one put in?
8 53.33%
Did the trial work better after the implant? 3 20.00%
Did the trial work better after the implant?
3 20.00%
Has it affected your mobility in anyway? 5 33.33%
Has it affected your mobility in anyway?
5 33.33%
If you were oftered one, why didn't you have one put in? 4 26.67%
If you were oftered one, why didn't you have one put in?
4 26.67%
Multiple Choice Poll. Voters: 15. You may not vote on this poll

 
 
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Old 05-26-2007, 09:47 AM #18
daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default yeah!

Jose...
Yeah, I am glad too! I was SO glad that I was not under worker's comp or something that was MAKING me get it done with him. I have no family or friends able to take me back/forth to this Dr's office.. that's why I would HAVE to take myself. Closer to home, I do have a couple people. They could probably even have the delivery guys from work take me back and forth. I told this guy if I needed one SO badly, I would get it done in Columbus, as that way it would be a LOT easier. He said I would be sorry if I had anyone do it but him, as that it is practically all he does.

The Dr. I saw in Columbus said much the same about it as what I read here... that trials often are better than perm, that it works best for one limb involvement - he said no work for at least a month, and no driving for that time. Not even in a car except for Dr. appt. for 3 weeks. He said you don't even move for fear of those leads moving till they start to scar in.

I guess you know which doc I would go to if I ever decided to get one done. I originally went to this other guy because he was reported to be so good with RSD because of his association with Stanton-Hicks. Believe me - I practically RAN out of that office.

OH--- and he almost did not see me because I refused to do what I believe was break my pain contract with my existing doctor. I get very few vicoden... they don't do me much good, so I don't take them very often. But, my doc has me on a very simple contract for them - just that I won't get any other pain meds from any other doc, or use them other than directed. This guy would not see me at first because I would not sign a pain contract with him, even though I told the nurse I am already under contract, had a copy with me, and said why do I need a contract when I am here for a consultation only and will not be getting medications from this doctor? I told her I was leaving and started to gather my things. She said let me talk to office manager... came back and said I could wait till after I saw the doctor to sign the contract, if he thought it was needed. GEEZ!!!

Wasn't trying to hijack this thread. But I do think it's important to realize that there are doctors out there like this. I don't think he heard a single word I said about my pain... he just saw RSD on the chart and $$ in his pocket. I do NOT believe the doctor I saw in Columbus was that way. Maybe because he didn't actually do the surgeries.. just recommended them to his patients - he was a neuro. But he knew more about them than the other doctors I have been to -- inlcuding this one that thinks I can drive home the next day.

I am very glad for those of you who have an SCS and that works for you. It just does not seem like the thing for me to try.
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