Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-23-2007, 11:55 AM #1
dealingwithtos dealingwithtos is offline
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Join Date: Jan 2007
Location: Midwest
Posts: 192
15 yr Member
dealingwithtos dealingwithtos is offline
Member
 
Join Date: Jan 2007
Location: Midwest
Posts: 192
15 yr Member
Default Does RSD really do this?

Hi Everyone,

I'm relatively new to RSD, but have had it undiagnosed for about 3 years until about 6 months ago. I had rib resection in August of 04 on my left side. The swelling, burning, sensitivity and muscle cramps are horrible. Well, my question is really about the spreading. I had wrote awhile ago about my eyes being affected. Well, now I have burning in my face (5-6 times a day) but is red constantly, burning and cramping in my other arm (often), hurting/burning in my hip and burning on the tops of my legs.

My husband wants me to go to my GP and get extensive blood work to make sure that I have RSD and not something else. I am more than willing to do that. Have any of you gone through this?

I'm currently on 600mg neurontin X3, Cymbalta, norflex and lidocaine patches. I tried a nerve block but was unbearably painful - but also didn't help at all.

Now, I know that I've gone a long time without a diagnosis and probably is incurable since I didn't get a diagnosis sooner. But, does another disease act like this? I just see it spreading everywhere.

I have a pain specialist that I've been going to. He diagnosed RSD. But, at this point, they only suggest physical therapy - and the DR told me to RELAX. Now, I'm in pain and the doctor has the nerve to tell me to relax!!! (pardon the pun). This was before I was taking a muscle relaxer - I just don't see anything improving. Not to mention it's expensive for the drugs!!!

I don't know, I just can't see that this is just RSD... This disease is absolutely horrible.

Can anyone help?
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