I have hearing problems, but when they tested me it came back as meineres.

Almost completely deaf in left ear, and serious ringing in the right. The left used to give me atacks at first that would roar a couple days followed by some very serious spinning.

After a few years of that, the left ear is now just feeling clogged up with a very high pitched ring 24/7. They havent said it is RSD related but wouldnt surprise me either.

I kinda like the deaf ear at night
Put the good ear in the pillow, and sleep in total quiet cept for the ringing lol.

Although talking on the phone is becomong increasingly difficult as the ringing in both ears over rides peoples voices. Even watching TV has become difficult, all the sounds just blend together in one big jumble of noise.

Sorry about all that is goin wrong with you, this RSD is a monster!

This is SO strange... my left ear is the ear that acts up too!

for starting this thread. I had a major flare up and lost hearing in both ears for a short period of time. Just stood looking at my business partners lips moving without hearing a sound. When my hearing came back it was not what it had been, and it still comes and goes. I noticed I had to have the tv at full volume at times. I have not had it checked as that is just one more expense, and I do not want to have to see in black and white one more thing RSD has taken away . Only sorry that others have to have this problem, but at least I know now my mind isn't playing games with me. Carose

Good Morning

I have an appt with my ENT Dr. today. He called and said that he was going to be talking with some other ENT Drs., the Radiologists that all read my CT scans, and I believe a Neurologist, to see if they can come up with some ideas as to what might be the culprit of all of this. Will let you all know what he has to say.

A week ago today they did my Myelogram and CT scan. I've had a terrible headache, my ears feel worse than ever...pain, ringing, fullness, and I've been lightheaded ( they had to do 2 Lumbar punctures and dye because he didn't hit the right spot the 1st time and 2 1/2 hrs after they released me I had to go back for some more scans...didn't get good pictures the 1st time). I think being hung upside down so that they dye flowed into my ears sure didn't help matters.

Thanks for all of your help.

cjay

I, too, have these troubles... but not on the scale you all do. I'm sorry to hear that you all are going through this. At least it gives me a warning for what might come.

I get the ringing, but not the deafness. I can still watch t.v. at a normal level, thank goodness... Michael would go nuts if I had to crank it up! He suffers from migraines worse than I do, I'd hate to inflict that upon him.

What I'm curious about is a bit different. Either it's a side effect of rsd, or I am going totally nuts. I hear voices! Not ones telling me to do bad things, lol. Just background voices, as if I were in a crowd and someone in the distance is yelling. I find myself muting the t.v. to figure out if it's really someone nearby, or if it's just in my head.

Anyone else hear things that aren't there? I'd appreciate knowing I'm not alone in this... or whether I need psychiatric help, lol.

i have noticed ringing in my ears lately - more than usual. AND every time i try to read a book my eyes can't ever stay still! it's like they go back and forth and cross and i can't focus on the page. i first noticed this when i was laying down so i just thought i was sleepy. then i sat up, i moved, i went to another room... could it be the meds? i mean, am i just too tired to read and focus? i can have the tv on and watch a movie without my eyes crossing and i am typing now without them crossing. what is it with reading books? maybe i'm just paranoid.

Well, I'm back from The ENT Drs appt. He doesn't have any idea what could be causing these problems. He wants to run a gamut of tests, to rule out all possiblities of a number of diseases that he feels could be the culprit. He said that if these tests don't show anything than he's almost positive that it's all brought on by my RSD.

He was very concerned about the headache that hasn't subsided since having the Myelogram done. So he made a few phone calls, to see what needed to be done. Well, I ended up having to go back to the hospital where the Myelogram was done. They had to do another Lumbar Puncture and then what they called a Blood Patch. The Blood Patch is done with the hopes that it will stop the spinal fluid from leaking. This procedure was not a pleasant experience...had a really uncaring radiologist, a terrible lab tech ( she put in the IV, so they could get the blood to patch into the puncure). The Radiologist said she hopes that she got it into the right spot ( she told me she was taking a stab at it...sure has convinced me that she'll never touch me again). If this doesn't work will have to have another one done.

After I get test results back, will let you know what the Dr has to say. I just hope that I finally can get some answers. Thanks for all of your input and experiences. I at least know that I'm not all alone.

cjay

OMG, Cjay, poor you! I had the same thing happen to me a few years back, and it was awful. I even had the same uncaring unfeeling idiots for the 2nd procedure...are you in Idaho Falls, lol?

Luckily, mine was put on right and I started feeling better within 36 hours or so. But they did tell me the same thing about hoping it's in the right spot... might be standard practice to say that.

Keep us posted, please. I've got my fingers crossed for you!

Hi there - I found 1 study showing that RSD affects hearing - I'm sure there are more studies out there, but this is the most recent one I could find.

Hyperacusis in patients with complex regional pain syndrome related dystonia, de Klaver,M.J.M.; van Rijn,M.A.; Marinus,J.; Soede,W.; de Laat,J.A.P.M.; van Hilten,J.J. Journal of Neurology, Neurosurgery, and Psychiatry. http://jnnp.bmj.com/cgi/content/abst....2006.111609v1 Published Online First: 30 April 2007. To whom correspondence should be addressed. E-mail: j.j.van_hilten.neurology@lumc.nl.

This study describes how people with CRPS are acutely sensitive by loud noise. (frogga wears earmuffs so she's certainly an expert on hearing hyper-sensitivity!)

If RSD can affect hearing in one extreme, I wonder if it could affect it inthe other direction as well (hearing loss)? For example, RSD can make skin extremely sensitive, but after RSD has progressed past into a more severe phase it can make your skin so it doesn't feel anything... like something burning. I wonder if it can do that to the part of the brain that is supposed to register sound?
Maybe Somebody Brave could email the researcher and ask?!

I had bad tinnitus for the first 6 years. It was a strange and very annoying form. Rather than a ringing it sounded like a loud squeeky wheel and it went on much of the time.

I still get it a little but now it's a very loud, even painful, ringing in my left ear but very brief.