Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-27-2007, 09:30 PM #14
daylilyfan daylilyfan is offline
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Join Date: Oct 2006
Location: ohio
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daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default Hearing

I finally went to an ENT for a problem ear. Found out part of my ear pain is due to having NO ear wax.. probably a side effect of taking to many drying medications. LOL. I thought I would end up with tubes in my ears - but the doc fixed me up without going to that. I have had a painful ear that feels like it has fluid in it off and on for 20 years. (allergies etc)

Anyway.... they did a standard hearing test when I got there. I have RSD in my left shoulder, up my neck, and along my jaw. I didn't think it affected my hearing, or the ear on that side. That is not the side I was having ear problems with.. that is the right ear.

OH MAN!!! did that hearing test hurt! It must have been the vibration, or just where the earphones were hitting my skin. Don't know. I was almost hysterical by the time it was done, wanting to tear the earphones off my head. I told them do NOT go by anything in the last half of that test... it would not be accurate! AGONY!

He wanted MRI of my ear and sinus area. I refused. MRI's are just to painful for me since RSD due to the vibrations. So, then he said CAT scan was ok... which was painless. MRI vibration is just awful now. I hope I never have to have another one.

Good luck with your tests. Hopefully your results will be as good as mine. A few different meds, but finally one worked, no more ear problems after ALL these years. Whew!

Jules
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