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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-08-2014, 04:54 PM #11
OhioDiane OhioDiane is offline
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Thanks Kim. It's nice to meet you.
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anon6715 (05-08-2014)
Old 05-08-2014, 04:55 PM #12
OhioDiane OhioDiane is offline
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Thanks Lottie
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Old 05-08-2014, 04:55 PM #13
OhioDiane OhioDiane is offline
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Thank you Allentgamer
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Old 05-08-2014, 04:56 PM #14
OhioDiane OhioDiane is offline
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Thank you Heidi
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Old 05-08-2014, 04:57 PM #15
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Thank you AZ-DI
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Old 05-14-2014, 10:30 AM #16
deedee0923 deedee0923 is offline
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Quote:
Originally Posted by OhioDiane View Post
Hello. I would very much like to connect with others who are dealing with rsd/crps. For the longest time I've been trying to tough it out on my own. I'm not doing so well with that. It's been a lonely and frustrating road. I try to minimize the collateral damage to my family. Minimize the impact of my rsd on their lives. The physical damage and limitations are beyond my control. The emotional fall out is what I try to hide. What I try to keep to myself. I want to support others and sometimes I'll need some myself. I'm looking for some friends here and looking for opportunities to be a friend. ((hugs))~Diane
Hi ohiodiane! Read your message and it was almost like you read my mind! I would love to be able to talk with someone who is in the same HELL as i am. Hopefully you will be up to comparing notes, stories, highs and lows, ect.. I will leave this text as is for now and wait to hear back from you. Thanks
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Old 05-14-2014, 10:54 AM #17
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Hi DEEDEE,
I just wanted to say a quick hello & welcome you to our amazing group of people. I can honestly say everyone here understands what we are ALL giong through everyday & although some days are better than others it can be a difficult struggle sometimes I know I've got days where I question everything (ie: why do I have to have this, how much worse is it going to get considering what I've already had to put up with it for almost 10yrs how much more can I take etc etc) but I have learned to take things as come deal with the day @ hand just one day @ a time you know. I know it may sound silly but I even leave myself notes like I'm a fighter, I can handle this things like that always a positive thing & it helps me get thru some rough days. Anyhow I hope you find the comfort I have here & the same for any other newbies here. Hope every one is having great days! Luv u all
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~HEIDI~
GENERALIZED RSD/CRPS stage II/III (entire body
.
) since 2004
HIP DYSPLASIA(right side), hip turned & tilted into back & aprox 2in higher than left side; <wear a shoe lift>
ARTHRITIS in both hips & Pelvis; Both Ball Joints are Deteriorating; SIATICA (both sides now) & EPILEPSY
.
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Old 05-14-2014, 01:04 PM #18
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Hi Diane,
Welcome to the forum.
All too well we in here can relate. The feeling of lost and alone in our struggles is far too common. At least we have this place to come and find info, friendship or just vent. There's always someone to lend an ear.
Best of luck...
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Hope for better days.....
Russ
okska'sssini ómahkapi'si
.
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Old 05-15-2014, 01:10 PM #19
OhioDiane OhioDiane is offline
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Hi DeeDee, I look forward to sharing with you. I'm just now figuring out that I need to look at notifications to see responses. I'll catch on as fast as I can..lol. Talk to you soon~!
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Old 05-15-2014, 01:19 PM #20
OhioDiane OhioDiane is offline
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Hey Russ, Thank you for the welcome. I can see myself stopping by here more and more. Wishing you peace amidst the storm~Diane
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