Hi HannaJane,

I'm sorry you've been dealing w/this demon of RSD for as long as you have & are having new issues, or a spread of it. I know its not easy and it takes it's toll, we all do here, your not alone! I cant speak for anyone else but for me I worked up until 5-6yrs ago full time, I"ve tried finding work even recently but most places see me walking (even w/out my cane A.K.A. PERSONAL STRIPPER POLE LOL) & all they see is I'm just a liability so they dont even think about hiring me, so needless to say it can be difficult getting work but I'm trying for disability/ssi but that's also a long process.. have you tried or started that going yet?? I found out u can still work part time or make only so much per month while trying for SSI/Disability that might be worth trying for or even doing something from home if you have a computer & internet just a couple ideas for ya not sure if that helps but I hope so.
If you ever want or need to chat feel free to email me sometime, also welcome to our group everyone on here knows what it's like, what your going thru, cause we're all going thru it on some level or another.

I totally understand where you are coming from. I also admire all the folks that responded. It takes tough people to endure the RSD.

I usually take some heat for what I am about to say, and dont think I have ever posted it here.....well maybe some of it, like the hardship part. It took the casino I worked for about 1 1/2 years to finally get rid of me. after working my way up from an $8.50 an hour position to Marketing Director, just to be demoted little by little until I was back at the bottom, and then let go.

For 2 more years I tried to find work, but like Heidi, they would see me coming and say no to giving them a resume. I finally signed up for SSDI. Here comes the part I take a lot of heat for lol.

It took 5 years, and is a loooong story about what it took for me to win SSDI. Suffice to say I won big once I was awarded. Now that 5 years was with zero income, and with a wife that had never worked at a job ever. She raised 6 kids, 3 our own, and 3 my cousins/foster care.

It was tough. I got behind in everything....even rent. I turned to God, and actually told him I had no way to physically help myself, and could not worry about this anymore because it will kill me. Believe me when you re 6 months behind on rent and everything else....if you focus on it....it will nearly take your life when you are also dealing with the RSD and the loss of your old self.

Once I totally released it to him.......I didnt get kicked out of the house. I still live in the same house. The power was never shut off, and believe it or not......had internet the whole time! In fact God took care of me better then I could have done. I know it sounds like crazy talk, but turn over all the troubles to God.

If you are to work....there will be a job. If not.....there will be a way, and sometimes you just cant look at the circumstances your in, or you will faint. Just remember he is in charge if we let him be in charge.

The hardest thing was letting go, but it was the best thing I ever did. I still do that, and I am being blessed beyond imagination even to this day.

MDs rarely mention vitamins or other supplements, they generally don't study that part of medicine..

We have e a vitamin and supplements forum, members here & there might suggest things to try.
http://neurotalk.psychcentral.com/forum49.html

We also have a SSDI /SSI forum. you can read and learn if you might qualify now or later on. Sometimes best to know ahead of time for better planning for future.
http://neurotalk.psychcentral.com/forum28.html

Always check out the useful stickys at the top of each forum..