I posted over in the Myasthenia Gravis forum but no one has replied yet.

Just wondering if anyone who has RSD/CRPS had been also diagnosed with MG. If so, how do you handle and treat both? Do you think the two are related?

I saw a neuro ophthalmologist last week who sent me for a special EMG, which was "abnormal". I am scheduled to have a single fiber EMG next week. It is looking more and more like I have MG and I need to learn more about it. Any tips or info would be much appreciated.

Thanks!
Nanc

I've already got my fingers crossed for you Nanc....hope this test turns out to be negative. If you do have the darned thing, well, you'll cope like the strong and intelligent bunny you are

But I hope you don't have to. Hang in there girl. Will be rooting for you.

Bram x

Thanks Bram, you are a doll! Been a little bummed out today

Hi Nanc,
I'm sorry to see your dealing w/something else on top of everything your already dealing with but please know I'm thinking of you as I'm sure we all are. I hope your test go better than you expect. I will keep you in my thoughts & prayers

Oh Nanc honey, I am so sorry. Goodness.. umm yeah I guess you’re a little bummed. I guess we shouldn’t borrow trouble though and perhaps it just won’t be true. I don’t know a darn thing about MG other than what I learned from a quick search, but it looks like it would be just horrible with CRPS. MG.. do you feel it in your muscles already hon? No.. I can’t even imagine it on top of CRPS Nanc. I know that you must feel overwhelmed, which is an understatement. I will keep you in my prayers Nanc. Please keep us updated!!

Nanc,sorry your dealing with such of many hard stuff all together,I will keep my prayers to you get well out of this ,sorry I like Vrae only know what I researched,but wish everything turn right and you don't deal with nothing else wrong,keep the hope,blessings as usual,you friend Jesika

I have a ton of "fun" (a term I use sarcastically and to keep my sense of humor) things to deal with, but MG isn't one of them. Sorry you have something else to deal with. I'll send happy thoughts, virtual hugs and prayers your way.

I don't know much about MG. I will be keeping my fingers crossed that you don't have it but if you do, I know you can handle it. You are one tough cookie.

Cripsy fingers crossed!



KimA

Thanks to all you guys!! You are all awesome!!

Not to be a Debbie Downer, but I will really be shocked if I do not have MG, really shocked. I am experiencing the muscle weakness and fatigue...big time! It all began with my right eye drooping so much, with that is blurred and double vision. Then there is the choking and trouble swallowing and I have had some breathing issues too. I was chalking everything up to RSD, but looks like it could very well be MG. It is all getting so much worse. When I asked the neuro that did the EMG Wednesday what "abnormal" means, he said that my muscles and nerves are not communicating with one another. He actually had them redo part of the test because it was so "abnormal". The second time was just like the first...and it was all TORTURE!!! He kept pushing that I should really get this second test, SFEMG, done. I have been discussing this all with someone on the MG forum who actually has both RSD and MG...she has given me some fantastic information. NT is so awesome!!!

Thanks again for your replies, you guys are awesome!
Nanc

Hi Nanc, I wish you did not have to add MG to your list of challenges. I , like the others, don't have a clue about MG but you know we will be here for you. And, you will teach us :-)