Hello, I was diagnosed with RSD in 2000. I am 46 years old and I feel as if I am all alone in this. I do have a great support system in place with my family and friends. I use to be a nurse and now I am disabled. I was going to my neurologist for Lidocaine infusions and had to follow a protocol which i did. The protocol was 10 days in the hospital with a Hickman port in my chest. After the hospitalization I went to the infusion suit for 4 weeks 2 days a week. After the 4th week I went for 2 days every 2 weeks for 5 weeks and then went two times in a row once a month. After 2 months then it went to three months.
My three month appointment was scheduled this past Thursday and Friday May 1 and 2. On Wednesday my doctor's office called and told me that Medicare was no longer covering the infusions. This made me really mad. I do not have a lot of money as I am on SSD. I was wondering if anyone had any suggestions as how I can get treatments when Medicare will not pay for them?
Please respond. Thank you and have a wonderful day.
Steve