Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-08-2014, 06:01 AM #1
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Default Hey all! Sorry its been so long, I have been through HELL!

Wow...where do I start! I had to move because as you know it was becoming unsafe for my daughter and myself, so we got our own place. In like the same week I injured my right wrist (yes my dominate hand) in a bad way. I tore two tendons, and three other big words that I don't remember. And I don't even remember hurting it!!! I swear I am being punished!! Well, it just keeps getting worse and the pain is unbearable!! So my doctor is now thinking that my CRPS has spread from my legs into my wrist! I don't know how to keep going on! I try.. Man I try! I stay positive! I ALWASYS THINK POSITIVE! I ALWAYS PUSH THROUGH! I TRY TO KEEP A SMILE ON MY FACE! I KEEP BELIEVING! I DON'T KNOW WHAT ELSE TO DO! I don't know why I am being punished! I don't know why my family doesn't care, why no one cares!!!! Why no one loves me? I just don't get it!!!

Anyway!!!!! LOL I am done! LOL Back to the mask! I have a question... I have Endometriosis and I am wondering if that is why I am in so much more pain during my periods or is it just my CRPS flaring up? I always thought it was CRPS but then I found out about the Endo, so I am wondering if I should go back to the doctor who tried to fix it during surgery?? Cuz man O man am I in some pain during this stupid time!!!

Thanks for everything guys and gals!! Sorry I haven't been on but it has been crazy!! Lots of crying and now typing is a pain in the rear!!!!!! I hope everyone is have amazing and wonderful days!! I am so looking forward to summer!!!!
Love, Angelina
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Old 05-08-2014, 10:27 AM #2
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Quote:
Originally Posted by Angelina55 View Post
Wow...where do I start! I had to move because as you know it was becoming unsafe for my daughter and myself, so we got our own place. In like the same week I injured my right wrist (yes my dominate hand) in a bad way. I tore two tendons, and three other big words that I don't remember. And I don't even remember hurting it!!! I swear I am being punished!! Well, it just keeps getting worse and the pain is unbearable!! So my doctor is now thinking that my CRPS has spread from my legs into my wrist! I don't know how to keep going on! I try.. Man I try! I stay positive! I ALWASYS THINK POSITIVE! I ALWAYS PUSH THROUGH! I TRY TO KEEP A SMILE ON MY FACE! I KEEP BELIEVING! I DON'T KNOW WHAT ELSE TO DO! I don't know why I am being punished! I don't know why my family doesn't care, why no one cares!!!! Why no one loves me? I just don't get it!!!

Anyway!!!!! LOL I am done! LOL Back to the mask! I have a question... I have Endometriosis and I am wondering if that is why I am in so much more pain during my periods or is it just my CRPS flaring up? I always thought it was CRPS but then I found out about the Endo, so I am wondering if I should go back to the doctor who tried to fix it during surgery?? Cuz man O man am I in some pain during this stupid time!!!

Thanks for everything guys and gals!! Sorry I haven't been on but it has been crazy!! Lots of crying and now typing is a pain in the rear!!!!!! I hope everyone is have amazing and wonderful days!! I am so looking forward to summer!!!!
Love, Angelina

So sorry you are going thru all this. Often, when going to bed at night, I am afraid to face another day in the morning. But somehow we don't give up and keep trying hoping a new day will bring something good.

As far as the endometriosis; definitely that can be a cause for the additional pain. Some women don't have pain; but many others do. I had endometriosis which eventually was covering parts of my bladder or liver; memory not to good since this was several years ago.

I eventually had a hysterectomy because of other issues as well. When the doctor first discovered the endometriosis thru a laparoscopy, he was able to scrape much of this off; but each period allows more to form.

My daughter had this some years ago. She was given something to stop her periods for a time which allowed the formation to stop. She has not had any issues since. I would definitely suggest you consult with your gynecologist.

Hope better days are ahead; they can't all be bad......right????


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Old 05-08-2014, 11:38 AM #3
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Sorry cant type much today, but I read your post...good to have u back but so sorry it's been so awful.... Exhausting and terrifying stuff. You will be ok though, ur a survivor

Take care, and keep smiling. You deserve to!

Bram
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Old 05-08-2014, 05:26 PM #4
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Sorry to hear things haven't been going well.

Congratulations on getting your own place

I've heard that periods/cramps are more painful for RSD patients. Maybe I read it here: Dunno: I'm on the Depo injection and haven't had a period in years.
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Old 05-08-2014, 06:44 PM #5
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Sorry things are not going so well,about the endo make sure,you call your dr and follow up,to see if is spreading in further areas,crps can also increase pain sensations specially in our visits from Mother Nature ,oh how I hate those days,I don't have endo but have intestinal cystitis and that dawn pain is so awful around my period days,I hope you get a second opinion in your endo condition also ask your crps specialist if endo can be related to crps if you did not had it before crps just to make sure is not a condition created from crps ,oh I hate crps so much ,but had no choice but live this way ,I know you get it too,hope you feel Better soon and keep your beautiful smile your daughter needs you,nice to see you back and blessing as well from Jesika .
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Old 05-08-2014, 10:42 PM #6
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Sometimes life just kicks you in the butt in an awful way. I think it's great that you try to stick to a positive attitude. I find that that helps me a lot myself.

I had endometriosis. My yearly physical was scheduled maybe a week after my CRPS diagnosis and I had already planned on asking about a hysterectomy to solve the problem. With my diagnosis, it solidified it for me. There is only so much pain I can handle in life at a time. I told the surgeon to ditch the uterus, keep the ovaries. It's been 6 weeks today and I know when my cycle is still based on my migraines and not a lick of pain. Not sure how old you are or where you are in life on the subject, but I highly recommend it if it's an option.
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Old 05-09-2014, 11:45 PM #7
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I have thought about it believe me! But I am only 30 and would like at least one more child if God blesses me with one. I didn't know I had endo but now it makes sense. I just thought periods were suppose to be that bad. I didn't really have a mom that was a mom and I was homeschooled when kids learn about their bodies in school, so I had to figure this all out on my own. In fact I finally got the guts to ask my older sister what a uterus was when I was 7 months pregnant! I just never really knew. I think I am still learning about my body.


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Originally Posted by Adalaide View Post
Sometimes life just kicks you in the butt in an awful way. I think it's great that you try to stick to a positive attitude. I find that that helps me a lot myself.

I had endometriosis. My yearly physical was scheduled maybe a week after my CRPS diagnosis and I had already planned on asking about a hysterectomy to solve the problem. With my diagnosis, it solidified it for me. There is only so much pain I can handle in life at a time. I told the surgeon to ditch the uterus, keep the ovaries. It's been 6 weeks today and I know when my cycle is still based on my migraines and not a lick of pain. Not sure how old you are or where you are in life on the subject, but I highly recommend it if it's an option.
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Old 05-10-2014, 12:34 AM #8
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Have faith,everything will be better,hope my friend ,always keep the hope,things happen for a reason,don't ever give up,blessings from Jesika
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Old 05-10-2014, 09:08 PM #9
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Sometimes oral contraception helps. Ask a doc. Also, you may want to go to a womens health center for support and guidance from knowledgable folks. Be well -lottie
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