Hi MDazzle!

Sorry it's been a couple days since you've posted with no response! I know it can be frustrating to pour out your story and not hear anything back for a while. Plus it was very well written and thoughtful

First off, there are several introductory threads started here by new folks over the past month where many members here have given great feedback to people who have been newly diagnosed. You could look back through some of these to get a feel for how this community feels/thinks/operates.

Second - and more specifically to you - You're only 20, you were diagnosed early, you obviously have a great head on your shoulders from your intro post, you have a supportive family and friend network, you've already begun several effective treatment modalities, and you've come to the right place to vent and share. In short, you have EVERYTHING going for you (although it may not seem like it with your world turned upside down like it is now). And you are going to beat this

I just want to make a couple of comments on your post and your general questions 1-3 above.

1) I dealt with similar frustration - lack of guidance and structure. I put together my own; it's a lot to put out here in response to a first post. PM me if you are interested and I'd be happy to give you a very detailed summary of what I did and what worked for me.

2) Same as 1.

3) Yes - it may seem counterintuitive, but ice is TERRIBLE for RSD. Period. I'm really glad you've done the research to have figured this out early on.

Lastly, I don't have much familiarity with TOS, but I know there are some members here that do.

My final advice would be to never stop asking questions until you find answers that make sense to YOU