Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-25-2007, 10:34 PM #1
Linmarie Linmarie is offline
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Hi Jennifer,
Sorry you got RSD. When I was diagnosed with RSD (almost 4 years ago) I got a lot of really good information & help from these boards. I saw your question regarding stellate ganglion blocks on another post. I had 10 & yes, he did use fluorscopy, I had the droopy eye. Sometimes my arm was warm, other times I didn't notice. I felt temporary relief with some of the blocks (& that made them worth it to me at the time). I listened to a relaxation CD before going for my blocks & my doc did say I was the most relaxed patient he had & asked how I did it. I did not feel relaxed, though. I don't know if there was any long lasting benefits from them or not. I was willing to try anything short of surgery (board members strongly advised against that, for which I am eternally grateful). I also had an EMG on my arm & have had 2 on my legs. To my amazement they weren't as bad as I anticipated. Then again, I had good docs administer them. Wanted to share my experience with you & wish you luck.
Linmarie
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Old 05-26-2007, 04:42 AM #2
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Hi, Jennie, and welcome to our "little family" I am a newbie, too, but somehow you find yourself feeling right at home here, like you've always belonged.

I am also sorry you have to be here at all, of course. Crps isn't anything nice. At least we all have this place... a place to feel safe while discussing our issues, talking with others who understand and saving our families the grief of knowing just how bad we really feel.
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Old 05-26-2007, 09:46 AM #3
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Hi Jennifer,
Welcome, I've been around neuro talk's TOS forum for a long time but I am also fairly new to the RSD forum and have just been diagnosed with RSD 7 weeks ago. Mine occured after a TOS re-do surgery..
Everyone here has been "Great" they are all so informative and have great and especially when you need them the most..
Many Hugs
Dawn
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Old 05-26-2007, 10:19 AM #4
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Jenny,
I have to agree with dawn as to how great this group of people are. I've only officially been dx with rsd for a couple of weeks. I have had it according to my doc for well over 2 years. It's a scary and painful disease, and the support if get here keeps me for doing a complete panic attack. Whenever I have a question or concern I jump on here and everyone helps quell my fears or just tell me that I'm not a baby/wimp/hysterical/making it up/ or any thing else you can think of. welcome
Mary
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