Hi. I was just wondering how many doctors you all see. I just spent half of my day making appts with drs I need to see. It seems like more and more every month. It's just awful. I hate sitting in drs office let alone ERs. I feel like it's taking over my life. Today was my list of drs to call:

PM Dr for med check and for check of what I suspect is more rsd spread to my feet and on my head (lots of sores that won't heal and burn)
Psychiatrist for med check and a good cry
Cardiologist for heart pains
Dentist for follow up, tooth pain and two cracked teeth
Root Canal Specialist for follow up on emergency root canal done a few months ago
Dental Implant specialist to see what they suggest for the tooth I lost last year due to a failed root canal.
ENT Dr for Ringing in my right ear which my GP diagnosed as tinnutis and possibly mineres disease
Endocronologist for scheduling of endoscopy and "other" oscopy for abdominal pain I'm still having
GP for pain I'm having in my ribs on both sides now
Podiatrist for the bones spurs found in both feet now that have caused my rsd to spread to them
Endometriosis dr for follow up in two months to see if the endo I got back has spread.
OB/GYN for yearly check and to get mamo and bone density lab slips to check on them ( I have osteopnia in my right hip and now my left hip is hurting)
Skin dr to check some freckles I have that are bleeding.
Eye dr for yearly check
and
Neurologist for follow up.
And last but not least a chronic pain coping psychologist.

OMG - It's just too much really. Before I got rsd I used to go to my gp once in a while for a cold or flu and my regular check ups with other drs. It's not that way anymore. Now I have so many more problems and see so many more drs. I hope all of you don't have to go through this too.
Anywho, I just needed to vent again. Thanks for listening and I hope you have a good night.

none and I have an Advanced decision banning anyone treating me in an emergency situation

Unfortunelly,sometimes everything needs to be review considering your condition,even if you schedule,different times,you don't know how your body will be by that day,try to spread then so you get less stress,maybe all the stress and specially dental issues are creating your body to flare up,you never know,take time to try to schedule all visits but not in the same week,try at least,blessing and hope you feel better soon,Jesika .

I'd see more if I could afford it.

On a regular basis

I see my PM doctor who manages my meds, etc for RSD.

Rheumatologist for my RA

GP for other general health issues and my depo injection.

Now that I have insurance I will probably start seeing my neurologist again for Chronic migraine.

I haven't been able to afford to see a dentist in a couple years except for going in to have my bite guard for my TMJ adjusted. My mom said she may be able to pay for me to have a cleaning at least.

Renee
I'm not sure how old you are but I also had endometriosis prior to my rsd. I had 2 ablutions and a oopherecectomy prior to a full hyesterectomy. (Sorry for spelling on my phone) anyway, then I started having colon polyps every year. Now I can only eat certain foods and I'm allergic to pork, gluten sensitivite and lactose intoleratant.

I have had rsd since 5/09. I don't understand any if this myself or why we go through these changes just try and understand god has a plan for our lives and that's what matters.
Live well as pain free as possible and gentle hugs

Hi I'm sorry if this is wrong way I can't seem to figure out how to make direct post I need some fast advise for my situation...I have had RSD for approximately 5 months...I wasted a lot of time chasing something else and had over 14 med tests in every area come back normal or negative. All the time watching in real time my symptoms grow and change just as the main org site said. So now I'm stuck and sacred as I read if u get it early and get nerve block u have a good chance to get some remission ..well time just marched on me I had no dr where I live that would know anything. About RSD so I went to the famous Blaustein institute and Johns Hopkins ( wait til they get. My review) I don't want to go on too long but the fellow and. Dr that saw me spent mere minutes, I had managed to bring and previously sent pictures I took of everything I could of course when I was taking pictures it was more for the bizarre nature of my symptoms I did not realize this was really some disease I never heard of. Ok now I leave JH with a misdiagnosis of neurapathy, I tried at end to point out the shiny skin on bottom of feet , the course non growing hair lots of things they only focuses on couple symptoms and they have some problem with how my pain moved and the fact that I was bilateral started in feet no actually trauma in traditional way but had shingles and all the maladies and giant leg edema flowed right after the shingles...so I assumed I got it from shingles, it started in stage 1, 2 and I beleive about 12 days ago began 3 although this dr I saw said don't use stages anymore they seem to work fine and accurate fore me ...it said my pain would increase in stage 3 it did by a humongous amount...my question and dilemma is this...if I don't get a diagnosis now or very soon for CRPS don't I lose the one early chance to get something accomplished by nerve block? And if I have to live with this stupid neurapathy. Diagnosis from a big name hospital what a joke I can still get pt etc for neurapathy but I intend for someone some dr has a brain about this and just sees what a monkey sees I have this and I need to know how to deal with it and whether missing a chance now at nerve block has any consequence...any help on finding right dr knowledgable to look at all your symtoms and history and see u have it and also about blocks my local pain guy is good but he also doesn't think it's RSD mine is little unique how I got who cares a duck is a duck and the pain went beyond the word pain what hit me Sunday for 4 hrs I never had before and knocked me out for 3 days. Please help if u can stay well all of u

Hi and I'm sorry you have rsd. I would get a second opinion from a neurologist to confirm your rsd and also see a pain management dr too to get treatment for rsd. My pm dr told me that the first two years are when you get the most results from NB or things like a Spinal cord simulator. I never got the scs for fear of infection, but I did get eight nerveblocks the first six months I had rsd. It helped a little but what helped the most was the prednisone my neurogist gave me for two months in the beginning of my rsd hell. After that they just kept me on meds to help manage pain. Neurontin and percocet. I was told that there is no cure but I could go into remission. But nobody knows when or how. It's different for everyone. I still think you have a better chance of remission with NB or maybe prednisone or SCS if you want to try that, since you have only had rsd for five months. I hope all goes well and you feel better soon. I'm not a dr so I would confirm all this with your drs. And if you want to post a direct post, just click on "new thread" box on top left hand corner of the first page of NT and start typing. Take care my friend. Sincerely, Renee.

Hey Renee

I see very very few docs, I never have seen many for this even though I live in an area with "the best" lol care and tons of hospitals, etc.

I have seen in the past

Neuro
Rheumatologist
Pain MNG

I only see pain management now and not often. Not because I am well, or anything, lol. I have major health issues ontop of RSD but because I don't take a lot of meds, (I cant function on them) and I refuse to do injections etc I just don't see many docs. i have had millions of MRI's, xrays but... I also never found any docs remotely willing or able to help me much. It was so hard to deal with it all over again with every doc. I now like my PM doc but they are very conservative and by the book, very.

Hugs