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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Senior Member
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Hi Chloe
![]() Sorry you have CRPS, but this is the place to get support and info, some great folk here... Can't type much at mo, long story ![]() Will reply properly soon x Bram ![]()
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#2 | ||
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Member
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Iam so sorry about your diagnosis. To learn more about the disease and how it works this website is good http://www.rsdhope.org/what-is-crps.html and if you look into youtube they have videos that show the changes that happen in the brain and nerves which causes all the symptoms. When I first was diagnosed no one really knew much as I lived in Alaska and the person who did didn't explain what had happened with my nerves and the changes it makes to the brain so I went online and did all my own research its funny now when I go to doctors I seem to know more then them. Like I went to a pain rehab center and they said they knew all about RSD and they asked me well what do you want us to do and I was like I know there is no cure as iam type 2 and it had been 4 years before being diagnosed and was full body and internal so I just said make me feel the best I can and to at least get me walking again, and the head doctor was like what do you mean it cant be cured he was like I can make it completely go away. I said ok but in the back of my mind all I thought was this guy has no idea what rsd is. The website I gave helped a lot and watching the videos on what exactly is happening inside our bodies helped a lot .
Sorry again about your diagnosis, and this is a great site to be on for info and support, I find much more support in things I go through here then with my own family, everyone is so wonderful and helpful here. Samantha |
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